Hi Everyone,
I am new to the forum and really appreciating everyone’s advice and suggestions, as I read through the information here.
I am looking for some advice if anyone can help me. I was diagnosed with ASD the end of last year. After a horrible time seeking a diagnosis through NHS, I ended up paying for a private diagnosis, following several years of on and off severe autistic burnout and exhaustion. It was expensive but was money well spent as I had suspicions for a long time.
I was diagnosed with Chronic Fatigue Syndrome / ME around the same time and query fibromyalgia. My GP referred me to rheumatology however, they (rheumatology) did not take the referral. I have considered seeing a rheumatologist privately however, I am struggling to find one who has experience of ASD. A lot of my symptoms eg pain, exhaustion, lack of function, brain fog, swollen glands I feel could be attributed to both ASD burnout and CFS/ME.
If anyone has any experience of seeing a private rheumatologist or CFS /ME service where they had experience of ASD, I would be really grateful to hear your experiences of the service and treatment options etc.
I am based in Scotland however, due to COVID 19 outbreak most services seem to offer an online option so any information about a UK service would be beneficial.
Thank you in advance.