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What is your opinion on this?

Secto

My son is 3 and is currently seeing a paeditrician and he impressed to her as Aspergers.

Since reading up more on ASD, I am pretty sure I am and also my father (who is a textbook ADHD.)

I spoke to my GP and asked to be referred somewhere for diagnosis, I was asked what traits I have etc. He then agreed to send me somewhere local.. I have heard people don't get taken too seriously if they are not sent to a proper place. I did suggest a referral to Cambridge (which is only 20 miles from me) however he said "no, let's try this place that I suggested"  It's been about 3 months and I have still had no appointment through or any contact..


I'm a bit unsure and skeptical as to why he wouldn't want to send me to Cambridge and would rather go to this local place that as far as I am aware does not diagnose people for ASD or if he is planning on referring me to anywhere at all..

Any help / opinions would be appreciated!


:)

  • If the place in Cambridge is Cambridge Lifespan Aspergers Syndrome Service they do take out of area referrals but your Local CCG needs to pay for it.

  • Thanks for the replies, the place I was getting referred to don't offer diagnosis for Aspergers & the one I wanted to go to in Cambridge only see people from Cambridgeshire and Peterborough. So it looks like I'm off to South London & Maudsley NHS hospital!

  • What your GPs thinking might be, Setco, is to have you screened for other conditions first.

    Numerous mental health conditions can produce symptoms that are very similar to Asperger's, so it's not entirely unreasonable to screen you for those first.

    However, there is a major risk here, because if the person screening you is not aware of Asperger's and the subtle differences between that and any possible mental health conditions, then they may misdiagnose you.

    Whereas, someone trained in the diagnosis of Asperger's can rule those conditions out by looking for the things that indicate Asperger's instead.

    If I were you I'd find out everything you can about the place you're being refered to, and insist on seeing someone trained in the diagnosis of Asperger's - this is your right, and questions of cost should not come in to getting you the right diagnosis.

  • Thanks for the replies, yeah I am on about getting a diagnosis for myself, I am a male. I'm in Bedfordshire, my boy is currently being seen at the Child Development Centre in Bedford, but as far as I am aware the closest place to me is the one in Cambridge - but it's not my local authority.

    I believe my local one is probably the Bedford one that I am being referred to, I don't really like the idea of seeing someone who was going to fob me off and not take me seriously as I hear this is quite common. I think I will make another appointment with GP and try and sort something out.

    Cheers!

  • It seems you are asking for your own assessment from my understanding.

    Even though the centre at Cambridge is only 20 miles away, is it in your local health authority?  If not, it would be classed as an out of area assessment which would cost more and they would want a better reason to send you, if there is somewhere local that can do it.

    Adults do face far more resistance to getting assessed and diagnosed. If you are a female it's even harder, as all the studies have been done on males and it can present slightly differently in females (more subtle/gender-relevant obsessions and collecting habits for instance, and females are a little better on the socialising front) and there is more resistance and out of date attitudes from professionals believing it's a more male condition and that more males have it.  

    He who shouts loudest is usually the one that gets heard, don't be shy to chase them up and harrass people until you get what you need.

    Googling for research and to find contact details of relevant contacts from the centre you are going to might be worthwhile.

  • 1.) Go back to your docs, and ask him to write to them again and also agree with him that if you do not get an appointment from them within the next month, agree that he will refer your son up to Cambridge or somewhere else

    2.) Phone them directly and ask them what the hold up is.

    3.) If you have the support of the Paeditrician, ask them to speak or write to the professionals on your behalf, as it was there observation. YOU HAVE BEEN LEFT CONFUSED AND CAUGHT IN THE MIDDLE., and professionals will not listen to you anyway, it needs to one of there own kind due to the closed system cueing constructs of the specialist controlling spheres which society has made, where everybody does something, but no one does anything really, but no one know what, where or how. And we wonder why the country has grounded two a halt, the industrial revolution has been too successful,we are now just knowledge boxes without measureable output, the classical waste model. Sorry for the semantics, but the lack of direction and efficiency annoys me.

    Good luck in sinking Britain.