Challenge

So here's the thing, how many people out there can testify to having had 100%, wall-to-wall, good quality experience in the pursuit of autistic health care and support?

How many can say "I have been taken seriously, treated with respect and given a good, informed, helpful response every step of the way from; partner, parent, sibling, work, school, GP, specialist, CPN, volunteer organisation and the outcome is/has been successful"?

I am waiting to see just ONE.

  • er.. no.

    I haven't had a bad experience so far... until recently.

    I already knew something wasn't quite right with our son, but on discussions with his class teacher, things became more prominent.

    The GP was good, listened to our concerns and refered us to the local Paediatric clinic. Our son saw the Paediatrician a few times, they had a few reports from school  but said they didn't want to label him and wanted to wait for 6 months to check on his progress. He was then refered to the in-house ASD clinic. Things were discussed throughout, the Paediatrician replied via phone to any concerns I'd sent on email. 

    The ASD clinic review has been slightly lengthy and compared to School Ed Psych referal SENCO say a little longer than normal from their experience. We received a diagnosis just before Xmas with a further review due in a few more months.

    What started off as - okay and understandable for the waiting - re: S&L and OT, this has now turned into un-acceptable. Our son is only just getting his appointment for the initial S&L review (after some 8 months plus) and the OT is another 6 months down the line and would have been longer had we not refered him ourselves before we'd recevied the diagnosis!

    We also had a charity representative in the initial review meeting, so that we could use their services if required. We joined them instantly.

    There was conflict in school with the teacher who pushed us to take him to the GP but his current teacher is the best in the world! Senco have been friendly and helpful (as far as school policies will let).

    My husband and I work for the same company and they have been very understanding, allowing us to step out when required for meetings etc.

    Parents are there if required, but divorced and I'm not especially close or trusting on one side and the other lives about 1.5hrs drive.

    So... I can say - we have been very fortunate and almost 100% until recently!