Hi, I am currently seeking a late diagnosis and am in my 40s.
I get the feeling that they have seen it all before. And the care you receive is not personalised. Just a kinda this is what I do when someone says x.
I asked for an Adult social assessment because I am not diagnosed and need some help. And I was told that because I do not have an autism diagnosis they will not be sending a qualified person from the autistic team. I nearly bit my tongue in half. I'm glad I had it in an email.
According to care law, they are supposed to use someone qualified to assess you. I decided to go for the test.
What happened was not a care assessment but a community care plan. That looked at me being able to use my phone to make reminders. I am fuming. It was like talking to a brick wall. I had my support worker and he was stressed. I was taking too long to talk with my stutter.
Is this a normal frustration
Or some kind of autistic thing to always have people follow rules?
What are peoples take on this?
Did you get a social care assessment or something else?
Any advice welcome.
I'm neurotypical ( do have abi so not entirely normal!) but I get seriously wound up with NHS staff and other professionals, they have guidelines to follow I completely understand that, but when they pass you around and end up making things more difficult it drives me nuts!
Oh, they have rules to follow. and those creepy internal policies.Like having to call 3 times before your problem is escalated. What if you are shy, why the hell would you call three times, let alone once.
Oh I get that one, I suffer from anxiety and hate making phone calls I can do it but I have to really talk myself in to it! And when they pass you between departments so you keep having to explain the same thing over and over it drives me nuts.
This comes under another rule. Quite a big one the Equality act - making reasonable adjustments for expected service users.
They know people have anxiety - they only provide a number when a text service would be better. This is super unlawful.