What keeps you fighting?

What keeps you going? Limited friends and the day to day can be tiring..,.,,

What keeps you going, what makes you smile and gives you hope?, what makes you laugh and gives you the motivation to get out of bed in the morning?

Another silly thread of mine, but I've had a tough day...looking for inspiration guys....dig deep people..

Parents
  • Former Member
    Former Member

    Big aspie appropriate hug Elie!

    My faith community are not evangelical, so even talking about faith seems a disrespectful thing to do :-)

    I've got this strange notion that there is purpose, reason and meaning regardless of how irrational and awful things are on a day to day basis. Have had less than a handful of profound spiritual moments in my 45 year journey, but for me that ultimately keeps me going.

    That and sheer bloody mindedness. 

    On the bus home from day 1 of 2 of a course on parenting with autism. We as expected are the only parents dealing with a late diagnosis on the course, but significantly we've got a woman from a specialist employment agency on the course. I can imagine in two years time arranging for SD16 to meet with her to look at options.

    Some eye opening moments around some strategies for setting healthy boundaries and house rules for both our ASD and ADHD SDs. I've been wrestling for months over SD20 not completing tasks, so when she comes back she gets overwhelmed. We were given an idea of traffic lights as  amber:"still stuff to do but almost done" and red: task done.

    It might help her see the benefits of working beyond amber to get ready for the next green light.

  • Bloody mindedness is definitely an necessity...

    if you ever had a small pet like a hamster when you were growing up....you'd know that if you moved or changed their bedding then they would spend the rest of the day putting said bedding back in order....

    the average day is like that, sometimes....hamster bedding ruffled...panic.,..furiously putting in back in order....and then...REPEAT....lol

  • Former Member
    Former Member in reply to .

    I had a pet rat called Ratus (Latin for Rat) and he was a mammoth mover of bedding.

    I've realized recently my FOO gave me a huge gift: self belief that I could do things. Perhaps not as fast or even the same way as NT folk but I could find a way.

    I had a horrible bout of depression in 2015 and the worst bit was I felt no matter how hard I tried it wasn't good enough. It took 6 months and a rejigged medication routine (same drugs different timings, that's a real spectacular ND drug adverse event) to get right and I'm still much more fragile.

    I've pointed out several times our biggest challenge is not SD16s diagnosis but rather her mother's unwillingness to work with us on ensuring she's getting the care she needs. One thing this sweet girl needs is someone who is going to be more stubborn than she is. When she's with us longer than a week her behaviour improves hugely. I don't let her fade into the background. I support her Dad to get her engaging with us as a family.

    If we can do that in a week, what would 6 months do?

Reply
  • Former Member
    Former Member in reply to .

    I had a pet rat called Ratus (Latin for Rat) and he was a mammoth mover of bedding.

    I've realized recently my FOO gave me a huge gift: self belief that I could do things. Perhaps not as fast or even the same way as NT folk but I could find a way.

    I had a horrible bout of depression in 2015 and the worst bit was I felt no matter how hard I tried it wasn't good enough. It took 6 months and a rejigged medication routine (same drugs different timings, that's a real spectacular ND drug adverse event) to get right and I'm still much more fragile.

    I've pointed out several times our biggest challenge is not SD16s diagnosis but rather her mother's unwillingness to work with us on ensuring she's getting the care she needs. One thing this sweet girl needs is someone who is going to be more stubborn than she is. When she's with us longer than a week her behaviour improves hugely. I don't let her fade into the background. I support her Dad to get her engaging with us as a family.

    If we can do that in a week, what would 6 months do?

Children
  • Former Member
    Former Member in reply to .

    Yep they were. yes gets skimmed today. Safer than I've felt in a long time Slight smile

  • But it's lovely waffle.....Misfit.....

    Were misfits 1 to 60 lost in a previous fight.......I'm thinking along the lines of a cat having 9 lives.......?

    hang in there...,the crack in the wall is almost mended....

    Slight smile

    feel safe here..you?

  • Former Member
    Former Member in reply to .

    Lots of rounds in the fight. But the fight is mostly worth it. It's a huge thing to become aware of our unique wiring. We blame ourselves for so long and being women think it's our fault and we must be doing something wrong. But hey guess what it is not our fault. The discovery is slow but we now know women do have dyspraxia, adhd and autism and that is a positive thing to know. It should make it less hard for future women and girls who even in primary school instinctively know so early they're just not part of the group. Most of my family aren't interested either and yes it hurts but my sister cared enough to help me get the diagnosis but doesn't really like talking about personal stuff. And when she's not here my dad takes me out about once a week but has absolutely no understanding of this nor wants to. So yes this is the only place so far that is open to talk freely about the downs and loneliness but also the funny positive quirks that make us who we are and perhaps allow ourselves to be so. 

    We just need more networks nearer to home but has anyone else thought it's easier for us to chat like this? No nvc, no judgement or expectations because of the way we look all extra stimulus is removed and it's just about what we think and can join in contribute in our own time. 

    Omg waffle waffle I always spout more when I'm tired. 

  • And your awesome too Misfit...

    i've had an up and down couple of weeks since self diagnosing....and hoped that my husband would be my rock,...but he is not interested...and that hurts....

    but on a positive.....

    instead, I am here and have found lots of amazing rocks, some pebbles...but not shingle, as yet....

    now...like you....I shall bite my lip and try to keep posts positive......

    how many rounds are in this "fight" btw?

  • Quirky is pretty awesome....isn't she! I hope appreciated and much loved....

  • Former Member
    Former Member in reply to Former Member

    They are lucky to have you and they clearly feel better for your support. Just shows a gently positive inclusive household can rub off in a good way. And the momentum of feel good factor does generate more possibilities and self esteem. It's great that you can offer this to help her. I'm trying to keep this message upbeat so will leave it at that

  • Everyone needs that person routing for them..,the challenge is sustaining the effort if you're having to do it yourself....and that's when breakages happen...

    your statement...no matter how hard I tried it wasn't good enough.....rings very true....and with that temperament and an Aspie head.....life can be quite exhausting and self-flagellating...

    whose's your rock?