Help! Are there any women in this Community with ASD

Been good to hear from any adult ASD diagnosed women in this forum... or does anyone know any good sites for ASD women?

Hello out there......anyone???? 

Parents
  • Not sure why it's posting me as NAS23891, my username is limegreenwelly, I am new to the forums, that was my comment about hf asd and inattentive ADHD! Am sending a query to the tech people about why this is happening! 

  • Hi limegreenwelly

    Got your message...how are you finding the forum?

  • Technical issues are driving me over the edge at the moment, and not being able to find a page where I can look at my profile and add a picture, it's all in the details, everything is so slow too! 

  • Former Member
    Former Member in reply to Spotty Tortoise

    Yes the tremors can be a bit scary. And am aware look odd too. Plus they are really tiring. So have to try extra hard to pace myself especially with things I find stressful but sometimes just not possible. Then I need loads of shutdown time to recover. So being in unknown environment was possibly stressful because you have to concentrate so much more and the build up to going and the extra mixing with people for longer... sounds a typical time for it to happen. Dr who I respected for diagnosis said we put so much effort into "being normal" joining/fitting in that it eventually takes a toll on our bodies. Taking the example from pain management we have to learn to pace ourselves. I find the spoons theory a good analogy for me and a different way to think about how we use our energy https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/.  

  • Former Member
    Former Member in reply to Spotty Tortoise

    That has been my experience of antidepressants too I couldn't tolerate them with similar effect. My Gp asks from time to time if I want to try them again but no thanks. It is tricky to find help with this. However speaking to others with long term depression we know it comes in waves but still hard to wade through the treacle until it eases again. And it makes me appreciate the little things in life more because every nugget of that's good/ ok/ beautiful counts. 

  • Hello again Misfit, I have had two occasions where the trembling hands has turned into whole body tremor and it was quite terrifying.  Both occasions where I was in unknown environments with no control over anything at all, this is part of the reason I want a diagnosis, for future protection.  Small steps indeed...

  • Thanks for your thoughts Quirky Friend, many years ago when I was on the treatment for depression roundabout Venlafaxine was one of the things they threw at me and I think I'd have been taking the contraceptive pill at the time too.  They became known as 'helicopter pills' around here because I had aural hallucinations of helicopter sounds if I was late taking them or forgot.  It became clear eventually that they seriously did not agree with me and made me aggressive and eventually suicidal.  Needless to say, I stopped taking them and have never trusted antidepressant drugs since, glad they work for you though.  Eventually I just retreated from the health services attempts at helping because nothing did help, now I know why I don't know whether to laugh or cry.

  • Former Member
    Former Member in reply to Spotty Tortoise

    Thank you to you too. Got me welling up now. That's exactly like me too. Exactly. Every paragraph. Except I get tremors instead. My head nods in a rather off putting way and body goes with it and walk like I'm drunk. It's usually when I'm stressed or exhausted or both. I'm very grateful to all of you for participating too as I have never ever "posted "anything anywhere before so this is a new experience for me. I'm feeling quite brave and a bit pleased with myself. So thank you. We just have to take small steps and take one day at a time. Clearly it does make a positive difference 

  • Former Member
    Former Member in reply to Spotty Tortoise

    Just a quick note after checking my emails at pee o'clock in New Zealand.

    Anxiety sucks. It really does. I ended up on fairly big doses of antidepressant meds to get it back to "survivable" levels. It's a bit of a risky strategy for neurodiverse people because we can have odd reactions to psychoactive medication, but between venlafaxine and running the oral contraceptive pill together continuously I'm a lot better. As long as I also do several sessions of high intensity exercise weekly - after a lifetime of hating exercise because of my DCD/dyspraxia, I've had to make a schedule for it -eeek!

    It's nice to see all these neurodiverse women regardless of whether they just know they are or someone else has confirmed it.

    I also suggest any woman who is want compassionate information on women and ASD to look for Tony Attwood's information on women and ASD on YouTube

Reply
  • Former Member
    Former Member in reply to Spotty Tortoise

    Just a quick note after checking my emails at pee o'clock in New Zealand.

    Anxiety sucks. It really does. I ended up on fairly big doses of antidepressant meds to get it back to "survivable" levels. It's a bit of a risky strategy for neurodiverse people because we can have odd reactions to psychoactive medication, but between venlafaxine and running the oral contraceptive pill together continuously I'm a lot better. As long as I also do several sessions of high intensity exercise weekly - after a lifetime of hating exercise because of my DCD/dyspraxia, I've had to make a schedule for it -eeek!

    It's nice to see all these neurodiverse women regardless of whether they just know they are or someone else has confirmed it.

    I also suggest any woman who is want compassionate information on women and ASD to look for Tony Attwood's information on women and ASD on YouTube

Children
  • Former Member
    Former Member in reply to Spotty Tortoise

    That has been my experience of antidepressants too I couldn't tolerate them with similar effect. My Gp asks from time to time if I want to try them again but no thanks. It is tricky to find help with this. However speaking to others with long term depression we know it comes in waves but still hard to wade through the treacle until it eases again. And it makes me appreciate the little things in life more because every nugget of that's good/ ok/ beautiful counts. 

  • Thanks for your thoughts Quirky Friend, many years ago when I was on the treatment for depression roundabout Venlafaxine was one of the things they threw at me and I think I'd have been taking the contraceptive pill at the time too.  They became known as 'helicopter pills' around here because I had aural hallucinations of helicopter sounds if I was late taking them or forgot.  It became clear eventually that they seriously did not agree with me and made me aggressive and eventually suicidal.  Needless to say, I stopped taking them and have never trusted antidepressant drugs since, glad they work for you though.  Eventually I just retreated from the health services attempts at helping because nothing did help, now I know why I don't know whether to laugh or cry.