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Jojo73

Hi all. I'm a lonely sad mum who has anxiety depression and agoraphobia. My son is 21 recently diagnosed with autism level 2 non verbal. He's starting with specialist autism services next week. . I'm going to be even more down once he starts. I know it's great for him but I'm just not getting any help or support. Facebook friends have been cut because these people are not friends, they just contact you when they want something. . Sorry I just need to have a moan sometimes. X

  • Hi and welcome Hugging 

    I don’t think you are moaning at all you are just describing the situation. I understand that you have worries about how you will feel when your son starts with specialist autism services but it could be the start of a new chapter for you both.

    Sometimes I know I can get very down about different situations but then I settle into a new routine and it doesn’t feel as bad as I imagined.

    You’ve found the right spot here to connect and get support.

    Keep reaching out.

  • Hi Jojo73, I hope you can enjoy chatting on here, it can help to get tips and general chatter!

    Welcome!

  • in reply to Olivia Mod

    I've been under my GP for many years but unfortunately no funding to help agoraphobia. I asked for a  be friender but funding has ended. Not any meeting places near me  either. 

  • Dear Jojo73,

    Thank you for reaching out to the online community, it is really good to have you here. 

    The NAS does run a Parent to Parent Emotional Support Helpline that offers emotional support from trained volunteers. It may be worth taking a look at seeing if it might be helpful for you.

    It might help to reach out to your GP to discuss how you are feeling as they may be able to offer some more support for you,

    I hope this helps. 

    Take care,

    Olivia Mod

  • Hello,

    Welcome to the community forum.

    The reason I joined before I was having problems with snail mail pen friends.

    Now I prefer digital as should of done this in the first place. Gained two pen friends on the community forum and we chat on Facebook. 

    I had agoraphobia during 2020 (covid pandemic); and 50% covid anxiety due to waking up at strange times.

    Occasionally, I go to Ladies soical group on Monday Afternoons. I like to Spend the afternoon my Friends. We have Various talks and activities held throughout the year. £4.00 per person for each meeting. Teas,Coffees, and biscuits included.

    I on Was on Facebook from 2006-2023; then got out of control and deleted my account.

    A year later I created a new account and not out of control. I understand about people aren't your friends (I was in touch with someone who was using me and didn't listen to my advice); 

  • in reply to AlanRalph

    Hi. Thank you for your kind words. Yes my GP is aware of my troubles and I am on medication but unfortunately no funding available for any help . Find out your true friends too when you need help and struggling. In my case my only friend lives 15 minutes away by car and I never see her even though I moved near her because she said she'd help me. Being in a village with not much transport is very lonely and sometimes wish I hadn't moved. I think I spent so much time concentrating on my son I forgot about myself  x

  • Jojo, please don't feel you need to apologise. I'm glad to hear your son is getting support. Have you contacted your GP about your own issues? Or perhaps NHS 111 if the GP isn't willing or able? I realise that your agoraphobia would make in-person consultation difficult, so perhaps talking over the phone would be a better way to start. You deserve support as much as your son does, I'm sure of it. Perhaps other forum members have other suggestions of resources or services you could use. Good luck.