Suspecting autism, but is it the real deal, and does it even matter?

Hi there,

 

I’m new to the forum and find myself here due to a number of months of self-reflection.

 

I have wondered recently if I may be mildly autistic. To give some context, I am in my late 30s and live a normal life, good career, wife, kids etc. In many respects, I have no problems, but I have become increasingly aware of certain aspects of my behaviour that can come across as ‘odd’ for others (which I see as perfectly logical and normal), which in turn leads to tension. This has been exasperated by the life changing event of having children.

 

There are a number of reasons I believe I may be autistic:

 

I struggle socially – I don’t avoid social contact at all, but I force myself to do it.

I find keeping friends possible, but a lot of mental effort. I feel like I put far more effort into friendships than I gain from them.

In a professional environment, I am able to network, but find myself talking at people (constantly, about anything, even off topic), and avoid certain scenarios.

I am very sensitive to sounds, finding some sounds annoying when others don’t hear them.

I don’t believe I struggle with most aspects of understanding the emotions of others or sharing my own at all.

My imagination has never been great. I struggle with imaginary play with children and can’t make up a bedtime story for example.

I keep logs of a lot of things, spreadsheets with stats of lots of aspects of day to day life (my weight, how far I have cycled and where, our household energy use by month, fuel consumption of our car, pubs I’ve been to, etc).

I love to plan all of my activities to a lot of detail and hate when this gets de-railed.

For route planning, I’ll look at a detailed map and plan out every turn.

When I’m cooking, I’ll prepare, measure and line up all of the ingredients before starting.

I struggle to make decisions – every option needs to be analysed in a lot of detail before making a decision, however minor.

 

I believe over the years I have become incredibly good as masking the perceived negative aspects of my personality.

 

In summary I do feel there are certain aspects of my personality that show significant autistic traits, but am I getting confused with social anxiety, nervousness and my general way of doing things rather than ‘real’ autism?

 

To attempt to answer this, I have found a number of assessments online as a starting point before talking to family or medical professionals.

Here are the score of the online tests I have done:

 

AQ50:

A score of 40 out of 50 (where 33+ represents significant autistic traits)

 Empathy Quotient:

A score of 33 out of 80 (where 30 or lower indicates autistic traits)

 Systemizing Quotient:

A score of 98 out of 150 (where 75+ is indicative of autism)

 Rivto Autism Asperger Diagnostic Scale (RAADS-R):

A total score of 104 (where 90 = stronger indications of autism, and 130 is the mean score of autistic people.

 Camouflaging Autistic Traits (CAT-Q):

A score of 144 (where a score of 100 or above indicates camouflaging of autistic traits).

 Adult Repetitive Behaviours (RBQ-2A):

A score of 36 out of 60 (where the threshold range is 26+, and average autistic score is 36).

  

I’ve done others as well, and I’m registering on pretty much all of them as within threshold.

 

I was wondering if anyone had any thoughts, and if it would be beneficial to seek further professional advice?

I feel a little bit like a fraud as I am aware my traits are not anything like those others live with, but also aware that it may be having more of an impact on my life (and others) than I assume it is.

I'm also struggling to understand if putting a diagnosis on it really matters, given my life has been going pretty ok without it so far. 

Any views would be most welcome.

Thanks.

Parents
  • Hello  

    Welcome to the community.

    We are all different and have different needs and motivations for seeking a diagnosis or not.

    I was diagnosed over a year ago and it was a life saver in the sense that I could start living without overwhelming guilt. My mental health has improved and I feel validated. I wouldn’t have trusted myself to self-identify as an autistic person without diagnosis but others here do and are content with that, or they have other reasons for not seeking a diagnosis.

    You might like to make a list of all the pros and cons for getting assessed: E.g., why do you want a diagnosis? How would you feel if you received a negative diagnosis? Would a diagnosis help you access certain services? Would it help you feel validated? 

    Best wishes for making the decision that is right for you.

  • Thank you so much for your response - I'm going to work on the pros and cons in the coming weeks.

    I've already thought about the risk of a potentially negative diagnosis, which would make me feel awful. At the moment, I don't feel I need the additional support of certain services, but it would be mostly for personal validation and potentially explanation to friends, family, colleagues.

  • but it would be mostly for personal validation and potentially explanation to friends, family, colleagues

    Those are valid considerations that many of us have considered here. 

    Some people’s friends and family are more receptive and positive than others to hearing news that their friend/relative is autistic. 

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