Suspecting autism, but is it the real deal, and does it even matter?

Hi there,

 

I’m new to the forum and find myself here due to a number of months of self-reflection.

 

I have wondered recently if I may be mildly autistic. To give some context, I am in my late 30s and live a normal life, good career, wife, kids etc. In many respects, I have no problems, but I have become increasingly aware of certain aspects of my behaviour that can come across as ‘odd’ for others (which I see as perfectly logical and normal), which in turn leads to tension. This has been exasperated by the life changing event of having children.

 

There are a number of reasons I believe I may be autistic:

 

I struggle socially – I don’t avoid social contact at all, but I force myself to do it.

I find keeping friends possible, but a lot of mental effort. I feel like I put far more effort into friendships than I gain from them.

In a professional environment, I am able to network, but find myself talking at people (constantly, about anything, even off topic), and avoid certain scenarios.

I am very sensitive to sounds, finding some sounds annoying when others don’t hear them.

I don’t believe I struggle with most aspects of understanding the emotions of others or sharing my own at all.

My imagination has never been great. I struggle with imaginary play with children and can’t make up a bedtime story for example.

I keep logs of a lot of things, spreadsheets with stats of lots of aspects of day to day life (my weight, how far I have cycled and where, our household energy use by month, fuel consumption of our car, pubs I’ve been to, etc).

I love to plan all of my activities to a lot of detail and hate when this gets de-railed.

For route planning, I’ll look at a detailed map and plan out every turn.

When I’m cooking, I’ll prepare, measure and line up all of the ingredients before starting.

I struggle to make decisions – every option needs to be analysed in a lot of detail before making a decision, however minor.

 

I believe over the years I have become incredibly good as masking the perceived negative aspects of my personality.

 

In summary I do feel there are certain aspects of my personality that show significant autistic traits, but am I getting confused with social anxiety, nervousness and my general way of doing things rather than ‘real’ autism?

 

To attempt to answer this, I have found a number of assessments online as a starting point before talking to family or medical professionals.

Here are the score of the online tests I have done:

 

AQ50:

A score of 40 out of 50 (where 33+ represents significant autistic traits)

 Empathy Quotient:

A score of 33 out of 80 (where 30 or lower indicates autistic traits)

 Systemizing Quotient:

A score of 98 out of 150 (where 75+ is indicative of autism)

 Rivto Autism Asperger Diagnostic Scale (RAADS-R):

A total score of 104 (where 90 = stronger indications of autism, and 130 is the mean score of autistic people.

 Camouflaging Autistic Traits (CAT-Q):

A score of 144 (where a score of 100 or above indicates camouflaging of autistic traits).

 Adult Repetitive Behaviours (RBQ-2A):

A score of 36 out of 60 (where the threshold range is 26+, and average autistic score is 36).

  

I’ve done others as well, and I’m registering on pretty much all of them as within threshold.

 

I was wondering if anyone had any thoughts, and if it would be beneficial to seek further professional advice?

I feel a little bit like a fraud as I am aware my traits are not anything like those others live with, but also aware that it may be having more of an impact on my life (and others) than I assume it is.

I'm also struggling to understand if putting a diagnosis on it really matters, given my life has been going pretty ok without it so far. 

Any views would be most welcome.

Thanks.

Parents
  • Hello  

    Welcome to the community.

    We are all different and have different needs and motivations for seeking a diagnosis or not.

    I was diagnosed over a year ago and it was a life saver in the sense that I could start living without overwhelming guilt. My mental health has improved and I feel validated. I wouldn’t have trusted myself to self-identify as an autistic person without diagnosis but others here do and are content with that, or they have other reasons for not seeking a diagnosis.

    You might like to make a list of all the pros and cons for getting assessed: E.g., why do you want a diagnosis? How would you feel if you received a negative diagnosis? Would a diagnosis help you access certain services? Would it help you feel validated? 

    Best wishes for making the decision that is right for you.

Reply
  • Hello  

    Welcome to the community.

    We are all different and have different needs and motivations for seeking a diagnosis or not.

    I was diagnosed over a year ago and it was a life saver in the sense that I could start living without overwhelming guilt. My mental health has improved and I feel validated. I wouldn’t have trusted myself to self-identify as an autistic person without diagnosis but others here do and are content with that, or they have other reasons for not seeking a diagnosis.

    You might like to make a list of all the pros and cons for getting assessed: E.g., why do you want a diagnosis? How would you feel if you received a negative diagnosis? Would a diagnosis help you access certain services? Would it help you feel validated? 

    Best wishes for making the decision that is right for you.

Children
  • Thank you so much for your response - I'm going to work on the pros and cons in the coming weeks.

    I've already thought about the risk of a potentially negative diagnosis, which would make me feel awful. At the moment, I don't feel I need the additional support of certain services, but it would be mostly for personal validation and potentially explanation to friends, family, colleagues.