Back to square one

Pardon the minor vent - after chasing (again) discovered this morning that the referral made three years ago for ASD assessment is back with local services as the place I was referred to stopped taking assessments one year ago. 

It came as no suprise to find out there are no local services, and so referral via right to choose via GP is my only option. My previous referral came through CMHT and was more likely to be taken forward as a result. 

Unbelievable that you can 'stop taking referrals' two years after it was made, dump it and not even bother to tell either the person who submitted it or the person waiting for the assessment. 

Guess what my predicted wait time is now, should it be taken forwards... Yup, three years. 

Super. 

  • It's beyond frustrating. Unclear as to why I wasn't notified - maybe as Im no longer under CMHT, though I asked for an update six months ago (via GP) and never got one so assume it's the usual 'system' rubbish. No one cares ultimately, other than me. 

    But yes, I'll carry on waiting as there's nothing else to do. GP is going back to the original referral people as well as starting a fresh, will also take it to regional board. There won't be a speeding up of the process though, unless something comes through quicker with right to choose. 

  • While it probably won't help speed up your assessment, it might be worth writing to your MP about what has happened. I'm sure you're not the only person who has been affected by this, and if nothing else it might shed some light on why and what the causes are.

  • I can imagine how frustrating this must feel.

    It is hard to have such patience, but there is no alternative.

    It seems very poor there was no re-referral. It seems unlikely the GP was not informed. 

  • It's pretty shocking that they didn't even bother to tell you, as at least you could have been a year into your next 3 year wait. I hope you are managing in the mean time.