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Back to square one

Acquiesce

Pardon the minor vent - after chasing (again) discovered this morning that the referral made three years ago for ASD assessment is back with local services as the place I was referred to stopped taking assessments one year ago. 

It came as no suprise to find out there are no local services, and so referral via right to choose via GP is my only option. My previous referral came through CMHT and was more likely to be taken forward as a result. 

Unbelievable that you can 'stop taking referrals' two years after it was made, dump it and not even bother to tell either the person who submitted it or the person waiting for the assessment. 

Guess what my predicted wait time is now, should it be taken forwards... Yup, three years. 

Super. 

Parents

  • So bit of an update here, which I'm not sure is more helpful than my initial response to it...

    Told by my GP this morning that the CMHT Dr who wrote that I am 'highly likely to be autistic' or whatever the wording was and referred me to a particular diagnostic team (which he said are the best he's come across and put together a really useful report detailing impacts/strengths/guidance) is actually qualified to formally diagnose.

    GP thinks he is probably obliged (by his service) to use that 'highly likely' term/not to diagnose specific conditions due to the nature of the service. GP is going to write to him to confirm this; I'm toying with emailing him too, though really I probably have enough that I need here if I can just bend my ridiculous brain around the fact that I've been diagnosed by a qualified person but dont have that definitive piece of paper... yet. 

    I'm back on the list via right to choose and the GP thinks he knows one with shorter (than 3 years) wait times... Meanwhile what I initially thought was a bit of a kick (in that I really just need that piece of paper with my name on and the condition to feel I can move on) may actually be something of a blessing: qualified and experienced shrink and his junior team all stated autism following MH evaluation. 

    It's autism isn't it?!

  • in reply to Acquiesce

    Massive breakthrough here, in that I contacted the Dr from the CMHT I mentioned above to find out if he was qualified and able to diagnose ASD, but couldnt within that service...

    His answer was yes and yes, which is enough for me to accept that his 'highly likely' wording was actually an all but formal and fully fleshed out diagnosis (and he was kind enough to signpost me to that in his letter, for further removal of doubt!)

    That's pretty huge for me, since I'd been struggling to accept things as I've mentioned here and in other posts and have been waiting a long time. 

    While I'll get the formal diagnosis eventually as far as I'm concerned that's it - I'm officially ASD and accept that as the case. 

    Huge!

Reply
  • in reply to Acquiesce

    Massive breakthrough here, in that I contacted the Dr from the CMHT I mentioned above to find out if he was qualified and able to diagnose ASD, but couldnt within that service...

    His answer was yes and yes, which is enough for me to accept that his 'highly likely' wording was actually an all but formal and fully fleshed out diagnosis (and he was kind enough to signpost me to that in his letter, for further removal of doubt!)

    That's pretty huge for me, since I'd been struggling to accept things as I've mentioned here and in other posts and have been waiting a long time. 

    While I'll get the formal diagnosis eventually as far as I'm concerned that's it - I'm officially ASD and accept that as the case. 

    Huge!

Children
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