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Back to square one

Acquiesce

Pardon the minor vent - after chasing (again) discovered this morning that the referral made three years ago for ASD assessment is back with local services as the place I was referred to stopped taking assessments one year ago. 

It came as no suprise to find out there are no local services, and so referral via right to choose via GP is my only option. My previous referral came through CMHT and was more likely to be taken forward as a result. 

Unbelievable that you can 'stop taking referrals' two years after it was made, dump it and not even bother to tell either the person who submitted it or the person waiting for the assessment. 

Guess what my predicted wait time is now, should it be taken forwards... Yup, three years. 

Super. 

Parents

  • I'm sorry to read this. It does take that long, I had to chase mine after a couple for a similar reason. It was only because I picked it up I was rereferred, I think its to do with a lot of these services being council run or merging with other services. In the end it took about 3.5 years - I have heard stories of it taking over 4 years. 

    Be ready if/when you are diagnosed of what to do next as a lot of questions can be left unanswered.

  • in reply to pietro_21

    Thanks - I think the most frustrating thing is how I've been bounced back to the first step. Given I was first told I was very likely to be ASD almost twenty years ago in the grand scheme of things another wait isn't the worst thing ever to happen, and there's plenty worse than me out there.

    I'm kind of waiting on formal diagnosis to enable me to fully accept the ASD - whether it will remains to be seen, and maybe I should just try to embrace what I've been told by lots but haven't been able to fully accept to this point... I'm trying but haven't really been able to so far. 

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  • in reply to pietro_21

    Thanks - I think the most frustrating thing is how I've been bounced back to the first step. Given I was first told I was very likely to be ASD almost twenty years ago in the grand scheme of things another wait isn't the worst thing ever to happen, and there's plenty worse than me out there.

    I'm kind of waiting on formal diagnosis to enable me to fully accept the ASD - whether it will remains to be seen, and maybe I should just try to embrace what I've been told by lots but haven't been able to fully accept to this point... I'm trying but haven't really been able to so far. 

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