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Overwhelmed post diagnosis

Connor

I had my assessment three weeks ago, post assessment I felt relieved and happy to have an explanation and the confirmation of what I felt like I always knew. However ever since that first day my emotions have changed massively, like I feel very agitated and upset. Alot of it seems to stem from having an answer at 29 years old, reflecting on the past a lot and not really knowing what my next steps are now I have the diagnosis.

Did anyone have a similar experience post diagnoses and do you have any tips for me? 

  • It is only natural that you will go through some confusing emotions as you will inevitably reflect on your life through the new lens of autism. I was diagnosed in my early fifties so had a lot of life to reflect on.

    Do not worry if you feel sadness or grief for all missed opportunities if only you knew then what you know. During this process remember to be kind to yourself, it is not your fault, you are broken just different. Welcome to the world of the 'Latelings'

  • Hey Connor. I was diagnosed last month at 40. lots of emotions but I found reading books really helpful (I've not read books for years btw). I like the science behind it all so I went for that first, then I read a few books on 'hints and tips', 'coping strategies and all that stuff'. I found knowing the science behind it helped me feel less angry. I'm still angry but much less so. I found a monthly teams group using the NAS website. 

    What works for me may not work for you but just wanted to say something that had actually made me fell better than worse over the last few weeks. I also sent the report summary to my GP, current therapy team and my IPS who is helping me get back into the workplace. 

    I bought an Autistic specific journal (if there is actually such a thing) it helps with breaking down the day and identifying triggers, feelings, etc.

    Good luck.

    Joey. 

  • Hello! And congrats on your diagnosis! After mine I got very very sad! I wrote here to the community and the members managed to relax me with their words. It is under the topic ‘sadness after diagnosis’ it was like a 1,5 month ago. I felt seen here and understood. Some days passed with that huge sadness and after I concentrated of readings about ASD and on my joys also. All the best for you!!! ButterflyButterflyButterfly

  • I got diagnosed at 32 last august and it was exactly the same lol. To make it worse it coincided with big changes for the worse at work and having a big spiral in my mental health. I did join an autism group near where I live to meet other autistic people which has helped a lot. Don't know if there is anything like that for you?