Terminology

Are there any particular aspects of autism related terminology that bother you?

Here are some of mine:

1.

ND -v- autistic

NT -v- allistic

The above terms seem (from reading here) to have become interchangeable but, to my mind, they shouldn't be.

Autism is under the umbrella of neurodiversity but so is Tourettes (for example).

Here is a wheel of ND but I've seen some with more 'conditions' included:

If ND is used instead of 'autistic' (when it's actually autism in particular that is probably the subject) I find it hard to follow the arguments/discussion.

2.

Another is the autism spectrum.

I don't know how it was meant when it was first termed, but my understanding of it isn't that there are ends of it that are less autistic, and more autistic, ie becoming more extreme, but rather than we (autistic people) can be less and more extreme as we dip in and out of the symptoms/characteristics:

Below is a link to an article that I think explains it well:

https://neuroclastic.com/its-a-spectrum-doesnt-mean-what-you-think/

3.

Also, if other people say 'we are all on the spectrum, all a little bit autistic etc' then I think it's important to bear in mind that a diagnosis is only given if the characteristics of autism that we match to are disabling to us.

How do others see the above and also, are there any other terms that you find difficult/confusing?

Parents
  • My personal dislike is being called neurospicy, it just doesn’t sit right with me. I’ve been called this by a couple of different people and just don’t like it. No real reason, I just find the spicy part makes being say autistic sound fun and entertaining.

  • Oh yes! I hate that word! If I described myself as neurospicy I would be putting myself on display. I see all kinds of images that aren’t what the word means—sandpaper, spotted, red, choppy, spiky, jaggy, Zanzibar, unpredictable, unreliable, sexual preference, gritty, ginger, hot. Also, it sends a nasty feeling through my torso.

  • Have experienced nasty feeling thro' my torso following consumption of spice too  !

    Joking aside I get what you mean - that feeling you describe i know think of as being a "gut feeling" of something being wrong in a wider sense and cues me up for some hard analysis for what the cause is.

    Then comes the often even harder part of what one might do about it!

  • don't be distressed   I have just read your post on another thread re; this and I completely empathise that stressors etc effect comprehension

    For this same reason i find real time face to face conversations, interviews etc troublesome 

    I tend to get quickly confused, overloaded and panic!

    personally i think this is likely to be an autistic trait - perhaps relating to how much of the social context I might be missing out on

    an alternate hypothesis that I am just not "clever enough" doesn't seem to hold sway (hehe hopefully that's not self delusion!)

    However I definitely notice a lot more when my expectations of myself aren't met than when I'm doing OK and like yourself get really frustrated by it!

    I am of the opinion that such terms as "neurospicy" might be deliberately chosen to convey several possible meanings.

    For some it is a lighthearted way of identifying theirs and others difference or "neurodivergence".

    The people using the term then are engaging in a conversation that might "dangle a bait and hook" for the recipient.  In context of which the responder to the term might "dangle another hook" in reply to see what the initial person means by this.  

    (I think the games of "teasing" insight and sharing info come from fears of rejection and/or manipulation sometimes.)

    Or one might just ask them what they mean by the term "neurospicy" maybe before making a decision about it?  

    The thing about reading what that vagus nerve feeling is telling us is perhaps dependent on the situation we find ourselves in and how we personally have become used to relating to it.

    Travelling in a car full of stolen goods and a police car appears in the mirror and that feeling for me would be fear.  For some it would be excitement (or so the movies portray it anyway..)

    I personally think that for whatever reason one can become "stuck" or habituated towards interpreting that vagus nerve activation in one particular way.  Maybe linked with particular events that have shaped one's body based psychology and emotion towards a particular bias.

    Maybe one can become unstuck?

     

  • Oh dear, I’m so sorry about that. I keep getting it wrong and I’m so frustratedPersevere 

    I don’t know how to evaluate it as it isn’t a gut feeling in the sense of unease about danger/boundaries/morality/harm/goodness/luck and that sort of thing. What other sorts of things can there be? 

Reply
  • Oh dear, I’m so sorry about that. I keep getting it wrong and I’m so frustratedPersevere 

    I don’t know how to evaluate it as it isn’t a gut feeling in the sense of unease about danger/boundaries/morality/harm/goodness/luck and that sort of thing. What other sorts of things can there be? 

Children
  • don't be distressed   I have just read your post on another thread re; this and I completely empathise that stressors etc effect comprehension

    For this same reason i find real time face to face conversations, interviews etc troublesome 

    I tend to get quickly confused, overloaded and panic!

    personally i think this is likely to be an autistic trait - perhaps relating to how much of the social context I might be missing out on

    an alternate hypothesis that I am just not "clever enough" doesn't seem to hold sway (hehe hopefully that's not self delusion!)

    However I definitely notice a lot more when my expectations of myself aren't met than when I'm doing OK and like yourself get really frustrated by it!

    I am of the opinion that such terms as "neurospicy" might be deliberately chosen to convey several possible meanings.

    For some it is a lighthearted way of identifying theirs and others difference or "neurodivergence".

    The people using the term then are engaging in a conversation that might "dangle a bait and hook" for the recipient.  In context of which the responder to the term might "dangle another hook" in reply to see what the initial person means by this.  

    (I think the games of "teasing" insight and sharing info come from fears of rejection and/or manipulation sometimes.)

    Or one might just ask them what they mean by the term "neurospicy" maybe before making a decision about it?  

    The thing about reading what that vagus nerve feeling is telling us is perhaps dependent on the situation we find ourselves in and how we personally have become used to relating to it.

    Travelling in a car full of stolen goods and a police car appears in the mirror and that feeling for me would be fear.  For some it would be excitement (or so the movies portray it anyway..)

    I personally think that for whatever reason one can become "stuck" or habituated towards interpreting that vagus nerve activation in one particular way.  Maybe linked with particular events that have shaped one's body based psychology and emotion towards a particular bias.

    Maybe one can become unstuck?