Terminology

Are there any particular aspects of autism related terminology that bother you?

Here are some of mine:

1.

ND -v- autistic

NT -v- allistic

The above terms seem (from reading here) to have become interchangeable but, to my mind, they shouldn't be.

Autism is under the umbrella of neurodiversity but so is Tourettes (for example).

Here is a wheel of ND but I've seen some with more 'conditions' included:

If ND is used instead of 'autistic' (when it's actually autism in particular that is probably the subject) I find it hard to follow the arguments/discussion.

2.

Another is the autism spectrum.

I don't know how it was meant when it was first termed, but my understanding of it isn't that there are ends of it that are less autistic, and more autistic, ie becoming more extreme, but rather than we (autistic people) can be less and more extreme as we dip in and out of the symptoms/characteristics:

Below is a link to an article that I think explains it well:

https://neuroclastic.com/its-a-spectrum-doesnt-mean-what-you-think/

3.

Also, if other people say 'we are all on the spectrum, all a little bit autistic etc' then I think it's important to bear in mind that a diagnosis is only given if the characteristics of autism that we match to are disabling to us.

How do others see the above and also, are there any other terms that you find difficult/confusing?

Parents
  • My personal dislike is being called neurospicy, it just doesn’t sit right with me. I’ve been called this by a couple of different people and just don’t like it. No real reason, I just find the spicy part makes being say autistic sound fun and entertaining.

  • Oh yes! I hate that word! If I described myself as neurospicy I would be putting myself on display. I see all kinds of images that aren’t what the word means—sandpaper, spotted, red, choppy, spiky, jaggy, Zanzibar, unpredictable, unreliable, sexual preference, gritty, ginger, hot. Also, it sends a nasty feeling through my torso.

  • Have experienced nasty feeling thro' my torso following consumption of spice too  !

    Joking aside I get what you mean - that feeling you describe i know think of as being a "gut feeling" of something being wrong in a wider sense and cues me up for some hard analysis for what the cause is.

    Then comes the often even harder part of what one might do about it!

  • PS I think that you communicate very well - just my opinion of course!

    hehe I base that on our being able to communicate together without arguing - sharing the possibility that you or i might both be "stuck" in some ways and both of us are open to resolving this...

  • Thanks for the reassurance   I believe that those stylistic similarities and differences that you pick up on are what their written words reveal about their thinking and behaviour and also our own.

    If you and I cannot immediately make sense of them there may be a variety of different reasons.

    I'll suggest a few if that's OK?

    You or I are "stuck" in not being able to properly understand what is a verifiable universal  "truth" they are expressing (for one reason or another).  If that is the case then conversations with others might enable us to become "unstuck" as a consequence. (there are other ways of course however that's a wider conversation :-) )

    They might be expressing something that is not universally and reasonably verifiable as a truth however they are "stuck" in that and wish to make their truth more universal by working really hard by fair means or foul to make us believe it too.  There is then the possibility of one carefully and respectfully looking to help them become "unstuck" ( whilst trying oneself to remember the first suggestion made above..). 

    The actual topic of conversation might not be possible to refine to a universal "truth" - both perspectives are reasonably valid given the available information.  Both parties might be better off, at that point, might be better off by acknowledging that, searching for more evidence and information and getting together later (this can be even a few milliseconds - like "oh I've just remembered" or "Oh, I've just had this thought" or a day "I've slept/ cogitated/ on that and what i now think is" or dashing off to a computer "I've found this article/ paper that says..." !!!) and discussing it in this context .

    I figure there are lots more possibilites I'm not clever or experienced enough to articulate by typing it down at present.

    I will share one tho':

    In practice a lot of the time neither parties acknowledge the possibility of being "stuck", have a flaming argument which reinforces this and progress recedes.

    I personally think that autistic people (especially post late diagnosis) are very handily placed to appreciate these matters as our very nature of our brains and our experience calls upon us to examine the possibilities I've outlined above.   Possibly even help wider society in such matters.

    The tricky thing may be that for a long time we have been "duped" for so long, our confidence and capability to decide which of these things are taking place might be reduced.

    Personally I am practicing to improve in this area.  Hehe - have to spend our time doing something.

    Best wishes!

  • Thank you for your kind words   You describe very well how I can be in face to face conversations too. You definitely are not deluded over your disregard of the “not clever enough” hypothesis.

    I’ll have to consider the vagus nerve thing, as that feeling is more to do with how I ‘feel’ colours and textures, rather than the perceived meaning of the word. 

    I don’t know if it is an autistic thing or not to have varying written and comprehension skills. I can spot stylistic similarities and differences in others people’s posts instantly, yet not always make sense of them. If so, I’m wondering if I’m losing the plot, sleep deprived, stressed or not, rather than being autistic, given that the double empathy hypothesis suggests I should be able to communicate better here rather than in a non-autistic world. 

    Maybe one can become unstuck?

    Perhaps. I’m looking into this. 

Reply
  • Thank you for your kind words   You describe very well how I can be in face to face conversations too. You definitely are not deluded over your disregard of the “not clever enough” hypothesis.

    I’ll have to consider the vagus nerve thing, as that feeling is more to do with how I ‘feel’ colours and textures, rather than the perceived meaning of the word. 

    I don’t know if it is an autistic thing or not to have varying written and comprehension skills. I can spot stylistic similarities and differences in others people’s posts instantly, yet not always make sense of them. If so, I’m wondering if I’m losing the plot, sleep deprived, stressed or not, rather than being autistic, given that the double empathy hypothesis suggests I should be able to communicate better here rather than in a non-autistic world. 

    Maybe one can become unstuck?

    Perhaps. I’m looking into this. 

Children
  • PS I think that you communicate very well - just my opinion of course!

    hehe I base that on our being able to communicate together without arguing - sharing the possibility that you or i might both be "stuck" in some ways and both of us are open to resolving this...

  • Thanks for the reassurance   I believe that those stylistic similarities and differences that you pick up on are what their written words reveal about their thinking and behaviour and also our own.

    If you and I cannot immediately make sense of them there may be a variety of different reasons.

    I'll suggest a few if that's OK?

    You or I are "stuck" in not being able to properly understand what is a verifiable universal  "truth" they are expressing (for one reason or another).  If that is the case then conversations with others might enable us to become "unstuck" as a consequence. (there are other ways of course however that's a wider conversation :-) )

    They might be expressing something that is not universally and reasonably verifiable as a truth however they are "stuck" in that and wish to make their truth more universal by working really hard by fair means or foul to make us believe it too.  There is then the possibility of one carefully and respectfully looking to help them become "unstuck" ( whilst trying oneself to remember the first suggestion made above..). 

    The actual topic of conversation might not be possible to refine to a universal "truth" - both perspectives are reasonably valid given the available information.  Both parties might be better off, at that point, might be better off by acknowledging that, searching for more evidence and information and getting together later (this can be even a few milliseconds - like "oh I've just remembered" or "Oh, I've just had this thought" or a day "I've slept/ cogitated/ on that and what i now think is" or dashing off to a computer "I've found this article/ paper that says..." !!!) and discussing it in this context .

    I figure there are lots more possibilites I'm not clever or experienced enough to articulate by typing it down at present.

    I will share one tho':

    In practice a lot of the time neither parties acknowledge the possibility of being "stuck", have a flaming argument which reinforces this and progress recedes.

    I personally think that autistic people (especially post late diagnosis) are very handily placed to appreciate these matters as our very nature of our brains and our experience calls upon us to examine the possibilities I've outlined above.   Possibly even help wider society in such matters.

    The tricky thing may be that for a long time we have been "duped" for so long, our confidence and capability to decide which of these things are taking place might be reduced.

    Personally I am practicing to improve in this area.  Hehe - have to spend our time doing something.

    Best wishes!