Autism/ADHD and PMS

Hello!

Totally feel you're pain on this, it is something I have been trying to understand and control for the last 7 years of my life. 

It is so easy to feel invalidated by the medical world, with these types of issues. I have come to learn that Dr's are very clever individuals but they are not specialists.

If you feel you are experiencing something to an extreme and it is severily impacting you're life, you have a right to be seen by a specialist and somebody who understands this on a deeper level. On the NHS this is known as ' the right to choose '. Where by if a patient doesn't feel their issues are being addressed to the degree that they need to be, they can ask for a referal to a specialist, through the right to choose scheme, I will post a link more for more information.

https://www.nhs.uk/using-the-nhs/about-the-nhs/your-choices-in-the-nhs/

I excersized my right to choose, as I was experiencing the same issues as you and it was taking over my life. I tried the recomended supplements, I became a hormone expert and read up about histamine intolerance and how if we are lacking in certain vitamins it can impact on our emotions throughout our entire cycle. I read up on iron deficiency and how this can impact on our anxiety and overall mood, I went for blood tests, I have gone down every rabbit hole you can imagine.

My periods got heavier, my emotional symptoms got worse, I knew I was experiencing something out of the ordinary and I asked to be refered to a specialist. They checked for cysts, nothing. They discussed birth control with me, i.e the marina coil ( lower levels of progesterone, but it is still synthetic )  they really pushed this option and at times I felt almost forced, I complained to the provider about this and I refused.  The next step was discussing ending my cycle, through inducing a medical menopause and starting HRT. 

I thought about that option deeply, because I was desperate and I almost gave in. But I thought to myself, this seems a bit drastic and im not happy with that suggestion, nor am I happy with the marina coil because I don't respond well to synthetic hormones. The pill made me depressed and numb and void of emotion and other birth control just gave me headaches and turned me into the maniac.

I discussed this with a consultant on my next appointment and said im not happy with that outcome. They explained they were glad I reached that conclusion myself and he suggested trying Bioidentical Progesterone just in the luteral phase of my cycle for now, while I could see how my body adjusts, over the next few cycles.

It has been three days, I have noticed I feel a level of calm I have not felt in a very very long time. I feel calm, my body isnt tense and aching.. My mind isn't racing as much and I am able to bring myself back. I can control the rage and bring it back, I feel overall just more zen, apparently this is what you're bodys progesterone SHOULD do, so It is clear my body is lacking in it. 

I understand that everybody reacts different and their bodys need different things, but I feel like I really had to push for this option and it was worth the fight.

Over the next 2 months we will monitor how the progesterone therapy is treating me and if anything else needs tweaking. It might mean that I also need support in the first 2 weeks of my cycle but I won't know this, untill my body has accepted the progesterone ( body identical ) - This part is crutial because people react far better to this type of progesterone as it is comparible to the form which is generated by our own bodys. I had a completely different reaction to this, than I did synthetic progesterone ( I.E the pill ) 

I suspect I am going through early peri-meno, which can happen for some people. But having read up on PMD I found that this form of treatment is prescribed for PMDD and PMS as a final resort. So I really just wanted to share my insight and my experiences in the hope it will help somebody else, to stop that forever search of a fix for something.

I really really hope this helps everybody here and Im happy to update my progress over the coming weeks should anybody need it. I am sorry if this is rambly and hard to make sense of. If anybody has any additional questions please feel free to ask away and id be happy to clarify.

Lots of <3 

We have to look out for eachother!

R

I know a couple of women who've got on really well with the mireana coil for heavy bleeding, one of the differences with it, is because you're absorbing an admitedly synthetic hormone via the skin, it dosen't pass through the digestive system or the liver iin the same way and thats why people get fewer side effects from it.

I found periods got easier and less painful when I had osteopathy and I know others have too, after all it makes sense that if your skeleton is out of alignment including your pelvis then its going to have effects in other areas, like periods and digestion.

I know a couple of women who've got on really well with the mireana coil for heavy bleeding, one of the differences with it, is because you're absorbing an admitedly synthetic hormone via the skin, it dosen't pass through the digestive system or the liver iin the same way and thats why people get fewer side effects from it.

I found periods got easier and less painful when I had osteopathy and I know others have too, after all it makes sense that if your skeleton is out of alignment including your pelvis then its going to have effects in other areas, like periods and digestion.