Harder and harder

Life is just harder and harder

I am level 2-3 they say between, AAC user no good understand instructions if not visual support used and have problems with mostly anything
It is hard and no support is hard too
I am often in hospital 2-3 times each week mostly and at least 1 time each week

Then I have very hard understand and process the information they give me and I am asked to reply at once but I do not know what I reply to Disappointed

Its very hard when go shopping since cannot read much text

I look for same colored packaging and same shape as I am used to otherwise not working

Have a lot medication for asthma, severe kidney problems, leukemia, glaucoma and this is so hard to manage and also 17q12 deletion syndrome

Now I do have a weekly planner and reminder for medicine but life in general is hard

Making food is extremely hard

But I love my Lego and play with things and fix computer problem and do wood things and love my garden but that it

Winter when its dark 18 hours each day even harder cannot be outdoor cannot do much just wait for the short summer

Why must life be so hard?

  • I am not sure what you want from this thread.

    If it for people to relate to you and many will be able to relate to you.

    Life can be hard, by the sounds of though you are doing your best to hang in there without support.

    Now, if you want more help it is impossible to look into more support not knowing what country you live in.

    Where I live you can get help travelling to hospital  and day to day to life with things like Dial a Ride for  transport use or use Taxicard.

    I employ a carer privately and that helps me around the home. It is not enough, but I have a limit to what I am ready to pay.

    If you want more help, what have you tried.

    I wish you the best

  • I'm sorry to read this S.

    I just wanted you to know that I'm thinking of you.

    I hope that maybe at some point support will be available to you.

    Life can be a bit of a battle, I agree.

    Sunflower