Newly Diagnosed 30 year old - ASD report next steps

Hi all,

I received my ASD diagnosis (level 1) a couple of weeks ago and felt an immediate sense of validation and exhaustion. However, I received my report yesterday and it was quite shocking to see all my problems laid out in a 13 page document... 

I'm feeling better after some sleep but wondered if anyone had any tips for the next steps? I'm planning to print it out today and start working through it systematically. The resources seem ok but they are very unspecific (e.g. they haven't said you have X trait so Y resource would help). 

Parents
  • Congratulations on your autism diagnosis, and welcome to the community. 

    I was appalled by my diagnostic report, which made me feel like a defective human being. However, if you've met one autism assessor, you've met one autism assessor - plenty of people have a positive assessment experience.

    My number one tip would be to keep communicating with other autistic people, who have quite frankly rescued me.

  • Many thanks, Neil! 

    I certainly empathise with that. While I was feeling pretty self confident (generally) about myself and my diagnosis the report was a bit of a knock. While my assessor was nice, having all my difficulties listed out was quite jarring. Though, it is surprising how I could have ever questioned if I was Autistic!

    Thank you for sharing, I'll definitely keep communicating with others. That's what brought me to this forum and I've been glad of the decision so far. 

  • I found it jarring and upsetting to read a report outlining differences as if they were deficiencies. 

    I'm amazed that I didn't realise I'm autistic much sooner (I was 41 when I was diagnosed last year). I think this was mainly because I believed in the Rain Man stereotype.

    Anyway, keep sharing too.

    (P.S. I've just changed my name to the name of my YouTube channel, just in case you wondered why I now have a pseudonym!)

  • I loved school, which was perfect for me because it involved accumulating lots of knowledge! Also, praise and merit were tangible: house points, certificates, prizes, etc. 

    In adulthood, knowledge and ability seem to be less respected than prejudice and nepotism. It's extremely hard and exhausting to navigate a world in which egos trump rules.

    Thanks for checking out the YouTube channel. I'm a lot less po-faced there than I am on this message board!

  • I completely agree - especially as, at least for me I am able to function and the problems arise when I don't function in the 'right' way. E.g. for me eye contact isn't something explicitly needed to communicate but some people think it's weird if you don't do it as they expect. 

    I am also quite amazed. I think a lot of my traits fell by the wayside because I was getting decent marks and in my schooling that's all they really cared about. I found out when I spoke to someone from school I reconnected with who was diagnosed and was very surprised that I found a lot of what they said to be relatable and here we are!

    Thanks for explaining - I was double-checking wondering where on Earth I had gotten Neil from! I'll check out your channel

Reply
  • I completely agree - especially as, at least for me I am able to function and the problems arise when I don't function in the 'right' way. E.g. for me eye contact isn't something explicitly needed to communicate but some people think it's weird if you don't do it as they expect. 

    I am also quite amazed. I think a lot of my traits fell by the wayside because I was getting decent marks and in my schooling that's all they really cared about. I found out when I spoke to someone from school I reconnected with who was diagnosed and was very surprised that I found a lot of what they said to be relatable and here we are!

    Thanks for explaining - I was double-checking wondering where on Earth I had gotten Neil from! I'll check out your channel

Children
  • I loved school, which was perfect for me because it involved accumulating lots of knowledge! Also, praise and merit were tangible: house points, certificates, prizes, etc. 

    In adulthood, knowledge and ability seem to be less respected than prejudice and nepotism. It's extremely hard and exhausting to navigate a world in which egos trump rules.

    Thanks for checking out the YouTube channel. I'm a lot less po-faced there than I am on this message board!