Autism and urticaria

Hey everyone 

Just putting this out there as I have always thought I was different when I was younger but didn’t have an awful lot of traits. 
I had chronic urticaria from say age 20 - 24 this is an extreme allergic reaction, I had intolerance tests with no cause. I was put onto very strong medication which had to be monitored. I put it down to stress but never really thought about the connection between autism and this. I do still get this now but hardly ever but I just wondered if anyone else has had the same experience or similar?

This started a few years after I started really struggling with panic attacks, these all seem like stress factors to me (I feel so blind)

Thanks for reading 

  • When I was having my autism assessment 2019-2021 i chose not to involve my mother in it like you describe with yours. The people assessing me were understanding and we continued the assessment.

  • Hi and thanks for your replies 

    This is another piece in the jigsaw for me. I have done a profile on myself to build a picture and my list is growing all the time. The only disappointment was I asked my mum today if she could think back to my childhood and write down anything that she thought was odd about me. Her reply was that it was a very long time ago and she cannot remember, I was hoping for a little more information than that. It looks like she won’t be the person I choose to be interviewed when I have an assessment. 
    Im glad you enjoyed the movie, I really wanted to watch it at the weekend but my wife said absolutely not and that she had watched it too many times in her life. 

  • Yes, I think I've been allergic to life/living generally up until now Upside down Hopefully this is slowly easing (that'll be a relief all round, for sure) Slight smile

  • I've been experiencing this since I was a child too, I hadn't heard it called urticaria, I had heard of 'stress induced eczema ' though. Thanks Thumbsup 

    I enjoyed watching Weird Science youtu.be/9qd04u2Yj44 on BBC3 recently. The last time I had was in the late 1980s Slight smile

  • I sufer terribly with allergies and intolerances, there lot's of foods and medicines I can't have, I'm known at my GP's surgery as 'the woman who's allergic to everything'. I'm lucky that I have very good GP's who don't try and force me onto medication that disagrees with me. One thing I did do was to learn quite a bit about alternative remedies and therapies and I use those a lot. I'd advice anyone who struggles with traditional medicine and doctors to research alternative solutions, but be careful there are a lot of charletans out there and if something seems to good to be true then it probably is.

  • Hi lain

    Thanks for responding, yes it does make sense to me now. Like I say I hardly ever suffer now and can handle that. I guess I removed some of the triggers without consciously realising. One big relief I’m guessing was working by myself and for myself. I used to work with a lot of people and really struggled in a big way. 
    Im really pleased your partner has got it under control also. This is all about being kind to yourself I suppose. 

    Thank you for the advice and all the best for the future 

  • I had intolerance tests with no cause. I was put onto very strong medication which had to be monitored. I put it down to stress but never really thought about the connection between autism and this.

    My wife suffered from urticaria as well and the tests were non conclusive because when you are in an attack you get almost everything showing as a false positive.

    The solution was to find the causes of the stress and remove them. In your case it is almost endemic so I suspect something like mindfulness and meditation may be the best approaches to it but with a head start of anti stress medication to get you out of the zone.

    These are best talked through with an allergy specialist with a good knowledge of autism and then with your GP.

    It has worked well for my wife over the last 5 years and flare ups are typically only when she comes down with an illness or exposure to one of the few things she really is allergic to.

  • Might be useful to investigate the connection to histamine and mast cell activation syndrome. I had a skin test for common allergens many years ago. I had no visible reaction to any of the allergens, but they used a priick of histamine as a positive control, this came up like Mt Vesuvius, but was ignored. I had and still have very sensitive skin and come up with urticaria rashes to virtually any form of skin irritation. If I absentmindedly rest my chin on the back of a hand, a few minutes later I will have an itchy nettle rash on my hand from irritation from my beard that I had not noticed at the time. I also have solar urticaria. If I am in strong sunlight for more than about 20 minutes I come out in painful and itchy rashes, on any area of exposed skin, except for my face. 

    For myself I do not think that these are allergies as such, allergies have to involve an immunoglobin response, but are non-specific. Like having the back half of an allergy but the specific response to a defined trigger is missing.