• Replies 6 replies
  • Subscribers 85 subscribers
  • Views 888 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Waiting for Diagnosis

Golf23

So having taken the step to start the ball rolling, I approached my GP to get a referral, which they did, I then got the questionnaires that I completed, got my mum to complete the family questionnaire and then sent it all back.

They assessed it and put me on the waiting list, which is 3 years long and I can't leave my area otherwise I will have to do the whole process again 

  • It took me almost four years to reach the end of the queue. I felt as though I was never going to get there and then suddenly it was done.
    One thing I did that helped me and the assessors was to start a private blog with the things I felt were relevant to getting a diagnosis. Memories from my childhood and the things that I struggled with. I don’t know if it’ll help you personally or not, I hope it does

  • in reply to Fibonacci Squid

    I have a new role in a different county to where I live so have to travel and cannot move as I really don't want to go through the initial stages again as that took 2 months 

  • Good luck with your wait!  I couldn't get it on the NHS at all as my CCG wont fund autism assessments for people under the care of CMHT, and private is costly but quicker.

  • The wait is ridiculous, Just passed the 2 year waiting mark myself.

    The fact that we can't move out of the area without starting over is even more so. I'm currently in the process of going to uni and part of that has involved telling many health people there that I don't have the option to change my GP. And I think this is an aspect that isn't often talked about. The other side of these long waiting lists is that someone waiting for a diagnosis, mental health treatment or who is actively in mental health treatment is effectively trapped, unable to move on to new job roles, education or just a new area because to do so is to lose access to healthcare in one form or another. It is awful.

  • Yeah, It took two years and five months to get my diagnosis, and I'm still waiting to receive the report document six months later.

  • The waiting is ridiculous isn't it? 

    I was diagnosed in 2011 but the ball started rolling in early 2008. Hard to believe the wait time is still years long. Needs to change.

    Hang in there. Focus on the fact that it's coming and each day is a day closer to it Slight smile