Autism and Right To Choose.

Hello Forum, 

My apologises for this post. I am a little lost and confused around the right to choose scheme in the UK, regarding autistic diagnosis. 

I'll provide some back story to provide context. I have been under various mental health teams for the past 6 years, and was under Coventry and Warwickshire's waiting list for an autism diagnosis. 1 year ago,  I moved to Staffordshire and have been told I will have to start from scratch with my diagnosis pathway. 

I have been referred to, and am in contact with AAA, a Black Country and Staffordshire based provider for diagnosis but haven't been given a time frame for my assessment.

Prior to this, I was informed by my initial assessor in Coventry to self diagnose, due to numerous reasons and including my aq50 score of 43/50. I even scored 43/50 on my aq50 for AAA black country and Staffordshire. 

I've been waiting near 6 years for a diagnosis now and really struggle socially, finding work and feel like my life hasn't moved on in the last few years. would anyone have any support or guidance for me? 

Specifically on whether autistic diagnosis can make use of the right to choose scheme in the UK. I don't think I can wait another 6 years as I'm pretty much homeless and jobless as it is. 

Thank you for your time in reading my question. 

Kind regards,

Alex

Parents
  • Diagnosis doesn't seem to open ANY DOORS at all. (I hope to be corrected) 

    The only advantage to knowing seems to be a reduction in personal confusion, and reduced expectations all round.

    Concentrate on not being a pain in the backside to those who are close to you, and remembering that they have to make adjustments every day in order to not get annoyed with you. 

    Some NT's will "shield you" some will "enable" you & most will persecute you or obstruct your progress in some way because they don't like the cut of your jib. 

  • Hi I Sperg, that does not sound like a nice way to live, to concentrate on not being a pain in others' backsides and always thinking about the adjustments they need to make. I find neurotypical people annoying and I have to make adjustments to deal with them but I wouldn't want them going through life focusing on how much I have to adjust for them and how much they can potentially annoy me.

    I would rather everyone focus on being the best version of who they are in themselves, whether they are autistic, otherwise neurodivergent or neurotypical. We all have to make adjustments for one another in life but it would make me feel bad to be thinking about this all the time especially in a one-sided way.

    Cheers,
    Caleb

  • Well, to be honest, I've tried most of the alternatives during the 59 years I lived undiagnosed.

    I'm currently at a fairly good and seemingly reasonably secure point in my life, after years of turbulence, I've ticked a lot of the boxes that my fellow Autists are struggling with, partly because there was no one telling me I was Autistic and that these things would always be a struggle or impossible for me. 

    It's a simple statistics thing "normality" is defined mostly by "average performance" (with an increasing amount of political indoctination/coerciion which I find of concern, but no-one else does). I think us people at the edge of the bell curve should realise that WE are the "exceptions" whether good or bad to "social normailty", and we can either jam up the gears or learn how the machinery works and act as a lubricant, BUT  that takes skill, application, and a will to be "of service".

    As for whether it is a "nice way to live" I see it much as like being a motorcyclist in a world full of car drivers. I can get there much faster than they can, usually, and I can always find somewhere to park the bike and go do my stuff quickly and without messing about.

    The Autism seems to give me similar mental abilities, but just like with the motorcycling you HAVE to do it right, or you will keep falling off and hurting yourself. JUST as you learn where you can and cannot put the bike on the road without colliding with the cars, or winding them up so much they try to kill you (It happens..) you an learn when and when it is good to give way to the normies point of view or emotional state and when it is time to hit them hard with whatever comes to hand.

    (Because nothing else works, it's either the  psychology and love, or ultra violence with the normies. Heck they are all too absorbed working out how to deal with serious mainstream issues like what pronouns to use to mis-describe each other,to have to try and adjust to my Autism. I see it as a simple kindness to try and help them deal with me as easily as possible.)  

Reply
  • Well, to be honest, I've tried most of the alternatives during the 59 years I lived undiagnosed.

    I'm currently at a fairly good and seemingly reasonably secure point in my life, after years of turbulence, I've ticked a lot of the boxes that my fellow Autists are struggling with, partly because there was no one telling me I was Autistic and that these things would always be a struggle or impossible for me. 

    It's a simple statistics thing "normality" is defined mostly by "average performance" (with an increasing amount of political indoctination/coerciion which I find of concern, but no-one else does). I think us people at the edge of the bell curve should realise that WE are the "exceptions" whether good or bad to "social normailty", and we can either jam up the gears or learn how the machinery works and act as a lubricant, BUT  that takes skill, application, and a will to be "of service".

    As for whether it is a "nice way to live" I see it much as like being a motorcyclist in a world full of car drivers. I can get there much faster than they can, usually, and I can always find somewhere to park the bike and go do my stuff quickly and without messing about.

    The Autism seems to give me similar mental abilities, but just like with the motorcycling you HAVE to do it right, or you will keep falling off and hurting yourself. JUST as you learn where you can and cannot put the bike on the road without colliding with the cars, or winding them up so much they try to kill you (It happens..) you an learn when and when it is good to give way to the normies point of view or emotional state and when it is time to hit them hard with whatever comes to hand.

    (Because nothing else works, it's either the  psychology and love, or ultra violence with the normies. Heck they are all too absorbed working out how to deal with serious mainstream issues like what pronouns to use to mis-describe each other,to have to try and adjust to my Autism. I see it as a simple kindness to try and help them deal with me as easily as possible.)  

Children