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Autism and Right To Choose.

Alex

Hello Forum, 

My apologises for this post. I am a little lost and confused around the right to choose scheme in the UK, regarding autistic diagnosis. 

I'll provide some back story to provide context. I have been under various mental health teams for the past 6 years, and was under Coventry and Warwickshire's waiting list for an autism diagnosis. 1 year ago,  I moved to Staffordshire and have been told I will have to start from scratch with my diagnosis pathway. 

I have been referred to, and am in contact with AAA, a Black Country and Staffordshire based provider for diagnosis but haven't been given a time frame for my assessment.

Prior to this, I was informed by my initial assessor in Coventry to self diagnose, due to numerous reasons and including my aq50 score of 43/50. I even scored 43/50 on my aq50 for AAA black country and Staffordshire. 

I've been waiting near 6 years for a diagnosis now and really struggle socially, finding work and feel like my life hasn't moved on in the last few years. would anyone have any support or guidance for me? 

Specifically on whether autistic diagnosis can make use of the right to choose scheme in the UK. I don't think I can wait another 6 years as I'm pretty much homeless and jobless as it is. 

Thank you for your time in reading my question. 

Kind regards,

Alex

Parents

  • Diagnosis doesn't seem to open ANY DOORS at all. (I hope to be corrected) 

    The only advantage to knowing seems to be a reduction in personal confusion, and reduced expectations all round.

    Concentrate on not being a pain in the backside to those who are close to you, and remembering that they have to make adjustments every day in order to not get annoyed with you. 

    Some NT's will "shield you" some will "enable" you & most will persecute you or obstruct your progress in some way because they don't like the cut of your jib. 

Reply

  • Diagnosis doesn't seem to open ANY DOORS at all. (I hope to be corrected) 

    The only advantage to knowing seems to be a reduction in personal confusion, and reduced expectations all round.

    Concentrate on not being a pain in the backside to those who are close to you, and remembering that they have to make adjustments every day in order to not get annoyed with you. 

    Some NT's will "shield you" some will "enable" you & most will persecute you or obstruct your progress in some way because they don't like the cut of your jib. 

Children
  • in reply to I Sperg

    Hi I Sperg, that does not sound like a nice way to live, to concentrate on not being a pain in others' backsides and always thinking about the adjustments they need to make. I find neurotypical people annoying and I have to make adjustments to deal with them but I wouldn't want them going through life focusing on how much I have to adjust for them and how much they can potentially annoy me.

    I would rather everyone focus on being the best version of who they are in themselves, whether they are autistic, otherwise neurodivergent or neurotypical. We all have to make adjustments for one another in life but it would make me feel bad to be thinking about this all the time especially in a one-sided way.

    Cheers,
    Caleb

  • in reply to I Sperg

    Hi I sperg, I'm a similar age to you (56) and have just been diagnosed.

    I'd be interested to know, has being diagnosed made your life any easier in any ways?

    And have you disclosed to all around you?

    Has it affected the way they treat you for the better or worse?

    Regards

    Dave

  • in reply to I Sperg

    Hello and thank you for your reply. 

    I have already experience ridicule in the workplace due to my personality and do struggle to maintain work in a social environment. I'm trying to not be a pain in the backside to those around me by trying to find some support. As you stated this is pretty much non-existent. 

    I do value your input and will certainly take your advice onboard. 

  • in reply to I Sperg

    Reminds me of the closest woman I had to a Girlfriend. She was the Primary Carer for her autistic brother, and has him mollycoddled. I had no one looking after me, with the same condition as him, but had to look after myself. Just now, I've stuck another load of laundry on and decluttered my attic these past few weeks.

    "He who is carried has no idea how far the village is." (Nigerian Proverb)