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Only just got my referal from GP

NAS72531

Hi everyone, hope you all enjoying the current UK weather !

I need to  find like minded people who have been coping with autism through their working life and, as an adult, need to find the best help between now and getting my first referal for autism/ as.

I have found that my GP couldn't help me apart from getting me a referal that could take 18 months to get...In the meantime, I have had to cope with my being 'overwhelmed' just about everyday. I get panic attacks and get mentally exhausted just goinbg out into town, or performing evryday tasks. I would love to hear what other people have done to help themselves cope. Are there any other organisations out there that could help and advise?

Besty Wishes

  • Welcome. I find things that help me are avoiding getting overwhelmed or burnout, so working from home has been a huge benefit for me. I've only come to the realisation that I might have autism in the last year, and before that I was pushing myself extremely hard to try to be normal and accept every social invitation and mask all the time and suppressing any stimming. This was very bad for my mental health.

    Things that help me are quiet places (where I can control the noises, smells and lighting), certain music (repetitive music with mathematical structures), physical exercise, being in nature by myself, and meditation.

    In lockdown I started going for daily walks by myself, and if I missed the chance during the day I would walk around the streets at night in the dark, which actually I discovered I enjoyed because nobody was around and there were no bright lights or loud cars. Now that pubs and restaurants have re-opened it's not the same.

  • Hi Nas,

    I hope these words come as some support or comfort,  but 2 years ago after 40 years of feeling an "outsider" I requested an autism assessment. 

    It took a bit if chasing,  which eventually meant my initial request was then sent to a different organisation called "Psicon".

    I just returned (about an hour ago) from my "face to face", with a confirmed  diagnosis.

    Hang in there and don't be afraid to keep bugging them every six months or so. 

    It took me 2 years, but the confirmation and acknowledgement now, means that the past 42 years makes more senses now, with a new future ahead. 

  • ...and I reduce my anxiety with Medication ie low dose of Citalopram - takes the edge of stressful situations Slight smile

    I find listening to music in my bedroom with the curtains closed and a blind fold on for an hour or so every evening helps too Slight smile

    Have you tried the AQ & EQ quizzes on your way to finding out you might be Autistic ???

  • Hi Welcome to this forumn

    Sorry you're having such a bad time

    I reduced my anxiety  using meditation