How long to wait for NHS assment?

They just seem to think they know best, anything rare or not textbook they mess up .They told me my deaf daughter had glue ear and was playing on it ,[got 15k compensation for that one ],Then told me my youngest had a dermoid cyst and wanted to try new experimental treatment ,that was after been turned away for 3 years .But was an encephalocele a bit of brain on the outside of her skull. Had it removed just after her 3rd birthday, she is 11 now and have had no follow up ,they just say it shouldn't make any difference ,she had no short term memory at all to start with but it has started to improve lately but still not good and she is just starting to be cotenant ,but still wets herself most days. 

When i look on the net they say these problems are common with encephalocele but the doctor says they aren't . and just wants to fill her up with laxatives .Where moving soon so hopfully will see someone good or may have to go private .

Then we have one with Tourette's ,one with severe adhd and one with aspergers,"decribed as off the scale"

My wife says where not good genetic stock,but they are all so intelligent ,the youngest  even with memory problems has a wisdom and is so good at games nearly always wins which is kind of annoying really.[doesn't overthink them i suspect] 

Wow, thats amazing AJ. I must be heading towards 2 years since I first asked to be referred & due to covid I'm expecting the 2-year wait I was quoted around Nov 2019 to increase by yet another year. Perhaps I should chase them? I'm more than happy to do online assessments. Would prefer it even.

I asked for a referral this time last year too, and had an initial assessment in the summer and had feedback from that but still waiting for a follow up appointment. I think things just move generally slow depending on your area.

I feel your pain there. It took 6 & 10 years to get my daughters diagnosed. I ended up moving area in the end because where I lived were seemingly incapable of diagnosing ASD & intent on blaming my marriage breakdown, which actually happened after my daughter had originally been verbally diagnosed with very severe ADHD & Aspergers by them. They often make these verbal diagnoses so you think you're getting somewhere & it won't be as hard as you've heard, then bang! They pull the rug out, do a U-turn & pin it on something else! If I could have that time again I'd pay for them to be dx privately. Good luck if you're still on this fight.

I would chase it up i have had multiple referrals for my children over the last 10 years + and the gps have not sent or messed up so many times ,the last one i waited 18 months to get to triage ,Then was told already had diagnose so wouldn't get one. Even though last one said needed redoing in a couple of years and that was 4 years before.

I would chase it up ASAP tbh. Sounds to me like your GP has done nothing. I asked for an assessment about 2 years ago, heard nothing so chased it up. Nothing had been sent. Then a few months later I heard back from diagnostic services turning me down due to lack of evidence. I went back to the surgery & saw a different GP to find out what was going on because I'd sent a ton of evidence that was pretty conclusive for ASD & ADHD.

You guessed it, the referral requests had been sent, but not the supporting evidence. The GP I saw asked me to email over my evidence & he'd forward it on for me. It was another few months before I heard that there was a 2 year+ delay on ASD & 20 months on ADHD. Then Covid happened.. It will be 3 years+ from when I first requested the referral before I get assessed. As you can see, it takes ages, so I'd nag your GP now. Or better still, look into private options, which is what I'm now doing!

Yeah, it varies wildly by where you are. I struck so lucky - the adult autism unit in my area only opened in September, so there is no waiting list and I went from GP referral to diagnosis in a couple of months. However, my daughter (through CAMHS) is a year into waiting and still no word. Don't give up, they'll get to you!

No harm in chasing it up, at least ask the current waiting period.

I'm in the North West and was diagnosed in December after approximately 12 months waiting period

Thanks for the comments, I think I shall leave it a few months before chasing it up. It has been a tough time for everybody but what I really want is to talk to a professional on how this may effect me going forward. I am furloughed from work but worried about coping when i do go back full time. I reciently passed up a new job as I didn't think I could cope with the change at the moment. Just dont want to get to a years time and find out I have to apply again and go back to the bottom of the list. take care all. 

me (NHS)  ...... got diagnosis 2 years from referral by GP for initial assessment

I think it can depend on which area you live in. I was told it would be about 18 months. My referral was about end of April last year so I'm not expecting to hear from them until towards the end of this year at the earliest. I know that some people go for a private diagnosis but unfortunately I'm not in a position financially to do that. Don't be disheartened. Turn your attention towards looking after yourself. That's the most important thing right now.