Newly diagnosed

your kids are outside the box so it helps if you can think outside it too.

been there , done that.

I suggest not 'putting her to bed' at all.

leave her up until you go to bed yourself, unless she falls asleep by herself.

Try to go to bed fairly early yourself too. I know it can be so tiring.

we found that co sleeping helped a lot too.

Hi Ember,

Thanks for your reply,

Sorry to hear that its taken you so long to get a diagnosis for your son as well, sometimes i think they just don't want to listen to us mums !!! Its been a very frustrating time for us all, especially for my son, who until now has not recieved the correct help, but hopefully now that will change, Better late than never i suppose ....lol

I hope your son is ok and that you are getting help and support, im also here if you need a friendly ear or if you too need to rant !!

Take care

Poppy x

Hi Poppy,

My son has just been diagnosed too! He is 14 years old.

Just like you it has not come as a surprise but I still feel like the bottom just fell out of my world.

I am relieved at having a diagnosis, angry that it took 12 long years of fighting to be heard and  being turned away and also grief stricken.

So if you want to talk or rant I am here for you

Ember

Hi Eviegirls - you might want to consider starting a new discussion about your daughters sleep problems. Perhaps in the Parents and Carers area - here's the link to start a discussion there -

http://community.autism.org.uk/node/add/forum/1397

my  daughter is 2 years old and was diagnosed in december with severe autism.

so far we are coping ok. but over the past couple of weeks my daughter has started to wake up at 2am every morning and wants to get up and play. have tried a few new things, but without fail every morning she wakes. after a few hours of her being awake, she eventually goes back off to sleep, but come 5am like clock work she is awake and that is when the day begins. she does'nt have afternoon naps, so is full on all day. sometimes getting her to bed is a struggle.

if there is anyone who has had similar problems please let me know how ou delt with it.

Sam (Evie's mum)

Thank you black hatmentor,

Thats really kind of you, but unfortunatly the anxious forum would not really be suitable, as he can't use a pc in that way, but thanks for the offer.

poppy

Not being able to express it is very difficult for me as well.

I usually go to my best freind who also has aspergers which means that there is no social rules for expressing it.

If you have him join anxiousforum I am a mod so can delete anything that offends him, and he can use the vent section to let it out. If he is finding it difficult I will happily help him on there.

Hi there,

Thanks for your reply,

What you say makes sense, my son does suffer with very bad anxieties, about everything really, but can't explain how he feels, and it presents itself in anger and frustration.

I will check out the links you gave , thank you.

poppy

From what I have seen thus far, approximately 2/3 of users of this forum are ignorant but feel they are an expert.

You will already know the strengths and the obsession, these are good to help deal with anxiety etc. Such as I am obsessed with programming so take a laptop around with me to retreat into if things get too much.

The negatives, try asking him how uncomfortable he is with specific things, areas such as social anxiety. Social anxiety I personally have, yet feel completely fine communicating on the computer.

I admit I am no specialist, but these are the best peices of advice I can give, which is mostly common sense,  from experience.

I was diagnosed at 19/20. If you want more info on what to be wary of happening click here.

*last edited by Jim V - mod - removing personal contact details.