I was diagnosed with ASD before the changes, although they were imminent.
Although I generally meet/met criteria for Asperger's (prior to the changes), I am not at all functional without significant support. This has led me to wonder about what level I am. I feel my support needs are more significant than level 1 (needing support), and that my level is moderate (level 2).
- I can't work at all, and even voluntary work is a challenge
- Can't drive
- Need help from my dad to manage finances and benefits
Never been in a relationship, and little prospect of this without significant support, and even then it would be hard
- No understanding of friendships, very socially isolated outside of family and support worker input
- Can talk very well and can mask quite well at times, but no deeper understanding of relationships or how to form them, and am very very rigid over routines and ways of doing things, which limits my life to a significant extent
- A very low non verbal IQ (although high verbal IQ), and several adaptive challenges (money, bills, forms, organising my living space)
So I feel, although I would have met criteria for AS before the changes, my support needs are more severe than many with AS, and that I would be Level 2.
Yet I'm confused what Level 2 really means? Not all clinicians seem to hand out Levels anyway, and it can't just be a replacement for the old subgroups? Some who were AS have very significant support needs, and as we know, AS was not a watertight diagnosis anyway.
Hi Hope. I don't know much about DSM levels. One of the reason why clinicians don't hand them out is possibly because there is no practical link to the laws and practices in UK. Both the ESA and PIP assessments are based on specific UK criteria that do not link to the DSM 5 levels. So in practical terms you don't need to worry about those levels. From your post it seems that you might qualify for PIP.Is there a particular reason you are looking into those levels?
Thanks, that's helpful to know. Did not realise they were only used in the US. I receive benefits already, was just wondering about Levels after seeing them talked about online.
While levels are not used ,the need for an accurate assessment of how well a person is doing is essential .IMO that should be based on all things affecting a person rather than just how mild or severe the ASD is .
More reputable online verbal IQ tests give me a 152 average , while more reputable non-verbal ones give me an average of 70 . The truth is without support I'd struggle to have a healthy level of independence . What adds to my situation is that I also have schizoaffective disorder .
Can someone post a link to these levels please?