Moving forwards with Autism

One thing that I’ve been wondering for the past few days, is how will I move forwards with Autism after the ‘post diagnosis phase’ has passed? Right now, a little over 9 months post-diagnosis, I’m still very much in the phase of reconciling with ‘being autistic’, of chatting with other autistic people on here and trying to ‘find my feet’ as a newly diagnosed autistic adult. But what happens afterwards? What happens once I have reconciled and found my feet? What parts of my old life will stay the same and what will change, what changes do I need to make to my life to move forwards with Autism? Sorry this is a bit of a Philosophical thread! What do others think? What parts of your life need to change to accommodate being autistic? Do you even think that you need to make any changes?

Parents
  • I think we each find our own individual ways of coming to terms with the diagnosis and living on with it. I feel my own personal aims and hopefully solutions are down to my life experiences, including much abuse I’m afraid, that has forced me to be the resourceful person I am now. I realise other people’s life experiences are entirely different, but that for myself I have the ability to choose whether to be a victim or a survivor in my mindset. 

    I’ll always be able to live on very little, but again that’s down to my past too. 

    Otherwise, Aidie seems to be doing the steps I am trying to. 

    Only change is that I need to recognise when I actually do need help and have to sort out ways of asking the right people in a way they recognise. So maybe I need to work on self esteem and trust. 

    It would be great to meet someone and chat about little problems, or big ones, but services don’t seem to provide for autistic adults at all and it’s hard to find similarly challenged older people who want to discuss how to overcome problems. To share ideas and experiences. I’m not readily understood either, which makes it seem easier not to talk at all. 

Reply
  • I think we each find our own individual ways of coming to terms with the diagnosis and living on with it. I feel my own personal aims and hopefully solutions are down to my life experiences, including much abuse I’m afraid, that has forced me to be the resourceful person I am now. I realise other people’s life experiences are entirely different, but that for myself I have the ability to choose whether to be a victim or a survivor in my mindset. 

    I’ll always be able to live on very little, but again that’s down to my past too. 

    Otherwise, Aidie seems to be doing the steps I am trying to. 

    Only change is that I need to recognise when I actually do need help and have to sort out ways of asking the right people in a way they recognise. So maybe I need to work on self esteem and trust. 

    It would be great to meet someone and chat about little problems, or big ones, but services don’t seem to provide for autistic adults at all and it’s hard to find similarly challenged older people who want to discuss how to overcome problems. To share ideas and experiences. I’m not readily understood either, which makes it seem easier not to talk at all. 

Children
  • You took the word out of my mouth....i could so easily have written the same as you...but not quite as lucidly maybe! Heres another nobody saying hi and thanks for your post.

  • I'm very sorry to hear that you have suffered abuse in the past, is that something that you have sought counselling/other therapy for?

    I would be inclined to agree with myself having the choice to be a victim or a survivor, personally I choose the latter, you?

    I think after initially being very closed to the concept of needing to change anything about my life I am becoming more open to the idea that I could benefit from adjusting certain areas of my life.

    There are very limited services for autistic adults, especially in terms of social groups. I noticed this deficit after a quick google search on the day that I was diagnosed. I set up my own group for Autistic women in my local area which so far is going quite well and provides and arena to chat about Autism related stuff or just enjoy a bit of Autistic solidarity? Are there any such 'unofficial' groups near you?