Life balance

I'm undiagnosed as some of you know. However, how do you balance your life and down time?

For example my husband was home for 4 days after being away for 2 weeks. He tried to cram everything in. He expects me to completly change my routine. So one day we went clothes shopping in a busy city, lunch out, he didnt want to go home after shopping for 5 hours! So we went trampolining in one of those huge places with trampolines all over the place. Then dinner out. 

I just wanted to go home. Get home I need time to myself as I'm hugely anxious. I want to garden alone as that's my thing. But hes upset I cant sit and watch a film (I dislike tv unless it's old movies but I do try) so I sit and watch a film all the time feeling like a bottle about to explode. Next day I spend 2 hours at the allotment as I need to get away to myself. I get home hes not so happy as wants to do something together. 

Last time we split up was because my only recharge was 2 hour beach walks with our dog. 

I need days to recharge sometimes but I try and compromise with an hour or so.

We've split up before over this and today hes gone back to work still sulking that I'm not as attentive as he needs. I just feel exhausted

  • We have tried counselling. Hes all I have, I dont have family. I just try the best I can 

  • He feels like a baby sitter when he's getting precious dad/son time when he's away most of the time Disappointed In all honsety, it sounds like his attitude stinks. I'm sorry your in this situation.

  • Thank you for your reply. He does like it all his way most of the time but sometimes can be good. When he is home, I still have to do most things on my own. even take care of our boy. If I go out too long he says its like hes just a babysitter. I find it so hard

  • This is a good read thank you. He often says I shouldnt take things literally or try and see the grey areas. 

    I like going out sometimes with friends but get to a point I need to escape. Sometimes I dont see that point and it's not good (usually if alcogol is involved) 

  • This sounds odd but I can write on here but cant explain it verbally. My business is quite new and I'm gardening. I find the people tricky but like the ones who leave me to get on. I'm at huge anxiety levels today as I feel I made an idiot with myself this weekend...I play situations over in my mind. But that was also after our whirlwind few days and a guy I worked for was too much for me.

    I usually screen shot my posts on here and show him but he still doesnt get it

  • I really admire the fact that you can run a business as well as look after a child.  

    You lay your thoughts out very eloquently on this forum - are you able to tell your husband about how you feel?     Does he get it?   Does he understand that interfacing with the world drains your energy?

    Are you able to write a Haynes Manual for him to understand the permutations and combinations of events that will sap your energy?

    What do you find invigorating?   What recharges your battery?  How do you decompress from the day's stresses?

  • I keep getting signed out from the forum today so it's taking a few minutes to reply. My husband works at sea. I was working full time and looking after our child with no support as I struggle with my family so no longer see them. I was made redundant so have now set up my own business and try to work it around childcare. He can be away 6 weeks or 6 days. Then home 6 weeks or home 6 days, it changes. But when hes home I'm still the main carer for our son. I've had a huge meltdown years ago and tried taking my own life. I didnt know I was possibly on the spectrum then. I was treated badly as no one knew why I was acting out (still hard to talk about). My inlaws since call me crazy to my face. I no longer see them. I'm trying to keep afloat in a world i dont understand and feel like I'm drowning 

  • It sounds like you know what you need to do to re-charge e.g spend a limited amount of time in busy places, garden etc. The issues seem to be that your OH isn't respecting your needs and wants everything his own way. Is he willing to change? If he is do you need outside help such as counselling? If not, does the relationship mean that much to you that you happy making yourself ill to be with him? I was diagnosed in October 2017, by the end of December 2017 the relationship I was in broke down as he and his family expected me to behave in a way that was detrimental to my health to fit in with NT expectations. I now have a loving husband and we both make sacrifices to take in to account our differing neurotypes. On our honeymoon, we used the afternoons to relax in our hotel room as I find holidays to be draining. He loves socialising so we regularly have people round ours (although we limited the numbers as I can't cope with large groups). I've just stopped work as I'm pregnant but before that I didn't work Weds as it gave me one day each week where I could sit in silence. I also like to have time alone in each evening, where I have a little boogie (some might see it as a stim) to get rid of the day's stresses. On the other hand, if my OH has a lot on his mind after work he likes to sit in the living room and stare into space. Even if I'd like the company I respect his needs, especially as we always have an hour of us time to cuddle and chat before bed.

  • Hi Mouse2

    I totally get your situation and have been there many times myself. Have a read of the following which comes from Cynthia Kim's really good website - www.musingsofanaspie.com

    I encourage you to share it with your husband.  Non of your words above are are rejection of HIM or a negation of your relationship, nor do they mean that you are pushing him out or don't care for him.

    I hope you find it useful:

    ___

    "

    LESSONS FROM AN ASPERGERS-NT MARRIAGE (PART 3)

    This is the 3rd in a 4 part series about the lessons my husband (NT) and I (aspie) have learned during the 25 years we’ve been married.

    Recognize that aspies need plenty of alone time

    Being alone is how people with Asperger’s regroup. When I retreat to my home office and close the door, it doesn’t mean I don’t enjoy the company of my family. It has nothing to do with how much I love my husband. It doesn’t mean that I’m disinterested, selfish, cold or insensitive. It means I’ve hit my limit for social interaction and need to recharge.

    Somehow, The Scientist figured this out years before we knew anything about Asperger’s and has learned to recognize when I’m nearing my limit, sometimes before I do. If we have guests staying with us for a few days, he makes a point to build time alone for me into the schedule. If he sees that I’m starting to tire or withdraw during a long social event, he’ll suggest that we do something away from the crowd for a short time to help me refocus. He’s also come to accept that when I say I need to leave a social situation, I’ve truly stuck it out as long as I can, and staying longer is going to cost me more than it’s worth.

    I probably sound like a social tyrant. Maybe I am. I’m certainly not an average wife who thrives on entertaining and socializing. But I’ve learned that being realistic about my limits–and pushing at them where I can–is less destructive to our relationship than overreaching and ending up in tears.

    Aspies need plenty of time alone. It doesn’t mean that we’re disinterested, selfish, cold or insensitive. (Creative Commons 2.0 (by-nc-sa))

     Compromise

    Good advice for any marriage, but especially important when one partner has Asperger’s Syndrome. You may find that some of the compromises you make are unconventional. For example, The Scientist and I have realized that we need to compromise about which social occasions I attend. He gets invited to a lot of work-related dinners, cocktail hours, award ceremonies, etc. We’ve concluded–after much arguing, discussing and agonizing–that it’s unrealistic to expect that I’ll attend every event (his preference) or none of them (my preference).

    Our compromise is that I’ll attend the important events and he’ll go to the less important events alone.  This means that I’m going to be uncomfortable some of the time (talking to strangers–oh no!) and he’s going to be uncomfortable at times (making excuses for my absence). Like most compromises, no one is completely happy with this arrangement, but it’s the least bad option.

    Compromising can be a hard skill for aspies to master. I’ve found that it helps to take a cost-benefit approach. What is doing this for my partner going to cost me? What would not doing it cost him? What are the potential benefits–for him, for me, for our relationship?

    For social occasions, the biggest costs are usually the anxiety in the days leading up to the event and the physical exhaustion I’ll feel afterwards. The benefits tend to be a happy husband and some enjoyable moments of social interaction. By listing the costs and benefits as concretely as possible, it’s easier for me to find places where I can compromise rather than reflexively rejecting every social invitation as being too much work.

    Identify triggers and try to work around them

    Triggers may seem odd or even incomprehensible to the NT partner. Case in point: I don’t like having the bathroom fan on while I shower. The drone of the fan and the feel of moving air on my wet skin are unpleasant sensations. Complicating matters, the shower light and bathroom fan are on the same switch so to avoid the fan I have to shower in semi-darkness. The Scientist thinks this is silly. He rolls his eyes when I flip the switch off. He says I’ll get used to it. He points out that the fan is on the other side of the bathroom. He understands a lot of my quirks but not this one.

    All aspies have triggers–experiences that elicit a stress response. Some people have many and others just a few. Triggers can be environmental/sensory (sounds, smells), social (crowds, public speaking), or situational (new places, unexpected changes). Some triggers, like the bathroom fan, are mild. They cause discomfort or low level anxiety, but we can live with them if we have to. Others are more severe, leading to angry outbursts, crying jags or mute withdrawal.

    If the aspie partner has clearly identified and communicated her triggers, the NT partner needs to do his best to respect them and make accommodations if necessary. Sometimes an accommodation is as simple as not explaining yet again why something would be fine if only the aspie would give it a try. Other accommodations can be more stressful on a relationship. If the aspie partner can only get a good night’s sleep by sleeping alone or she finds grocery stores intolerable, both partners need to be open and honest about what kind of accommodations are feasible.

    Communicate

    You’ll find this advice at the top of most “secrets to a happy marriage” lists. The thing about being married to an aspie is that we have serious communication deficits. The NT partner may think he is communicating but most of what he’s saying doesn’t seem to be getting through. NTs communicate in subtle ways that aspies find difficult to interpret.

    Here’s a typical example: One day I was making lunch and the following exchange took place:

    Me: “I found this great new recipe for chorizo and grits. Do you want to try some?”
    The Scientist: “That’s okay. I’m not very hungry.”

    I was a little hurt that he didn’t want to try the new recipe I was obviously so excited about but I went ahead and made enough for myself. Thinking he might like to taste it, I offered him a bite.

    The Scientist: “Wow, that’s great. Is that all you made?”
    Me: “Yeah. You said you didn’t want any.”
    The Scientist: “But I hoped you’d make me some anyhow.”
    Me: “I asked you if you wanted some and you said you weren’t hungry.”
    The Scientist:  “I didn’t want to make extra work and I wasn’t sure if you had enough for both of us.”

    I was stunned. It would have been no extra work to double the portion and I had plenty of ingredients. Why hadn’t he just said “yes” when I asked if he wanted some? Apparently I was supposed to know that his “no” meant “yes.” Apparently this is what “good wives” do. We both felt bad afterwards–he felt like I was being selfish by cooking only for myself and I felt like I’d been tested and failed.

    Keep in mind that we’ve been married for twenty-five years and know each very well. Yet, this still happens now and then.

    Aspies need explicit communication. Forget about dropping hints. Forget about body language and inferences. We need to be told exactly what our NT partner wants, needs, or expects. And we may need to be told more than once, in slightly different ways, until we get it."

  • I don't work any more but my wife still does.   Her down time is limited by needing to go back to work, mine is not - so I make sure that I fit my needs around hers - I have the time and space to recharge before and afterwards so I plan my days around her time off.

    I get very, very tired doing NT things - but she needs the de-stress from work - so her needs outweigh mine at that instance.    I can overdrive my body for a few days to provide a good user-interface but I can crash out afterwards for a few days.   She also understands that sometimes I need to escape or sleep so there's a limit to my interactions.