Published on 12, July, 2020
This took some digging to find! We're all so familiar with the AQ50, EQ, RAADS-R etc but I've not heard this one discussed much.
As far as I can tell, it was developed by Cardiff uni around 2015.
I haven't found an easy online version of it, but you can get the questions out of the paper here:
https://rd.springer.com/article/10.1007/s10803-015-2514-6
If you answer the questions in Table 1, you can work out a score.
If I'm interpreting the scoring correctly, you can work it out as follows:
Add up your responses according to the number 1,2,3 at the top of the columns. You should get a number between 20 and 60.
If you want to see where you fall on the scale as a total, convert this to a number between 1 and 3 by dividing by 20 [Edit - previously said 60 here, incorrectly], and then look at Table 4 which effectively says:
There are also instructions here:
https://research.ncl.ac.uk/cargo-ne/Repetitive Behaviour Questionnaire (RBQ-2)scoring final1.pdf
...on how to work out sub-scores for 4 different factors which I haven't yet looked at.
I scored myself 1.6 (raw score 32, taking care not to over inflate my report in the ASD direction) which is within one SD of the ASD mean and more than one SD away from the NT mean. So unless I've done something wrong, this is evidence of ASD-like RRBs that my NHS assessment hasn't (yet, hopefully!) found sufficient evidence for.
I'd be really interested to know other people's scores!
This could so easily be turned into an online version too....have I missed one I wonder?
I change my clothes every day but I have lots of the same type of clothes, lots of pairs of jeggings, lots of jumpers, lots of t-shirts. So it's easy to just put the same combination of jeggings, jumper, t-shirt on every day. It's easy. The only time it's different is when it's far too hot for jeggings then I 'll wear a dress.
I pick an outfit and then wear it until I have to change it. I hate then having to pick the next outfit but once picked, I do the same with that. 95% of my wardrobe is the same colour anyway but I like to wear the same clothes again and again. I work from home so mostly this goes uninterupted. If I have to go into an office or am doing an activity that requires specific clothing then that interrupts it but other than that I just like to wear the same. I remember watching a Chris Packham programme where he showed his wardrobe and the fact that he buys the same item several times and was the first time I'd heard of anyone else doing that. Just makes complete sense to me!
The thing about this exercise is you need to be with a clinician to help you understand what really counts as unusual behaviour. You are never going to get anywhere doing this by yourself. Your own perception of 'I do this a lot or 'I do this a little' is never going to be anything but your own perception. Your own normal. It will never really show up unless someone makes you aware. "Doesnt everybody do that?" Well do they? This what a clinician can tell you.
cheers. Have spent most of the week teaching how to calculate the mean to year 7 so it was fresh in my mind!
Yes :-). I kept making that mistake when I was working out my scores. It's always the simple things that I get wrong! Edited the original post.
Certainly going to try to feed it back, somehow. Potential routes are via GP and the ADOS. I need to clarify what "The Neuro team ......cannot follow up further or review" means (sounds to me like I don't have a right of appeal but I'm confused because the process isn't finished yet?)
Yeah I'm like that with clothes, I literally live in different sets of jeggings and a jumper, unless it's really hot. I'm also a repeat offender of finding a track that I like on a CD and then playing it over and over..........
Yeah I think I can see where you're coming from.
Kinda. More like if I cant meltdown at my desk I do something mechanical and repetitve that's more acceptable like typing in a frustrated way because that is at least not banging on the table like a toddler and it somewhat relieving my need to flap about. And typing is not really stimming as such so I cant factor it in to the quiz .
An example: I'll change my clothes but always wear the same type of trousers ,unless for a special occasion .
Another example: I'll collect lots of articles on my USB drive and jot down things on numerous bits of paper , but don't collect things like beer mats, sci fi memorabilia etc
Another one : I tend to watch episodes of some tv programmes again and again when they come on the tv rather than looking for another show to watch.
I kind of see what you mean. Stimming and repetitive behaviours can be a response to stress and having to hide who you are from others!
It's me. I find it hard with questionnaires in general to adapt the specific language used to my own situation.
If anyone is still playing here.... I score 41 with a mean of 2.05
That's ridiculous.
Most of my symptoms are stifled or sublimated into something the normals won't notice. So for me it's more like a 'just how repressed are you?' Scale than a 'how autistic?' If you see what I mean.
The questions do require some thought to answer them accurately! They could be better written!
I have a very rigid routine and limited activities . However I found it hard to relate my own personal behaviours with the actual wording of the questions . .
I might do so now just to see what I score! Only 43 (2.26) for when I was a child, that surprises me!
Yes, I noticed that!
Wow! That's quite a high score!
I scored 50, with a mean score of 2.5. Some of the repetitive behaviours I don't do any longer, such as spinning or smelling objects so the score would have been higher. As an adult I stay in my bed all day which passifies me, due to suffering RLS (restless leg syndrome) when sitting down.
Factor 1: Repetitive Motor Movements – 12 / 2.4
Factor 2: Rigidity/Adherence to Routine – 19 / 2.71
Factor 3: Preoccupation with Restricted Patterns of Interest – 16 / 2.28
Factor 4: Unusual Sensor Interest – 8 / 2.0
The score is pretty accurate in identifying problematic areas. I am very rigid in my routine and only find pleasure in restricted activities.
I'm done with Christmas Cards said:
If you want to see where you fall on the scale as a total, convert this to a number between 1 and 3 by dividing by 60, and then look at Table 4 which effectively says:
Do you mean divide by 20? (mean is add up total score and divide by how many questions there are) - if so, I scored 42, 42/20 =2.1 mean