Now that you have asked your doctor and they have put your forward for a diagnosis. The diagnosis can be 10 months or more. In this time you may get a further pre-assessment. Perhaps they will send an AQ10. Later they may ask you to come in and then you should get a diagnosis. Which you can disagree with.
The government and autism activists have moved heaven and hell to safeguard people with autism. And you will welcome this when it comes. But what about before?
There is legislation which helps suspected people without an autism diagnosis but this is hard to come by. I have written this guide to help me and those currently waiting for diagnosis and having a hard time. Funny because they have difficulties like autism but have not a diagnosis.
Bookmark share. Add comments if something needs changing or being updated.
This guide does not include convincing your doctor, the fabulous autism.org should be your home page. Just a valuable prompt to get help whilst you wait.
Good list. I did all of them although 5 came after diagnosis. And aside from all that, I played games on my phone and indulged in special interests such as researching people like Henry Ford and watching black and white movies that made me feel good.
Greetings...This is a strange Thread. Inviting a lot of... well, if it happens, then there will be a lot of it.... (!!)
You missed out "PIP". And Depression is a bigger thing also; yet if "Suicide" is mentioned then that is an entirely different Legal approach. ( Including inviting response/censorship from NAS Moderators, here.)
...I must say, ...No, this is NOT a hostile/critical Post/Reply! This Thread does mean well. And I am okay with it. The thing is, most of us go through these "processes" once, and the process changes a lot and changes quickly after that. Legal Terms/Spellings & Departments change often (doing the same thing but changing the Name/Terms.). And it sometimes takes more than a Year. And it entails a lot of long words, behind-the-scenes discussion, non-disclosed exchanges, and... well, good luck!
I emphasize again that I like this Thread, even though this Post may not read like it. And Good Luck with it, again. Yes, Really.
I have read this and would like to provide some feedback (Autism/Asperger's not yet diagnosed and waiting) to help:-
Equality Act 2010 is there from a legal perspective, others have highlighted useful sites/links on the forums BUT for anyone like me it is TOO MUCH INFORMATION and not bite-sized chunks. MIND is also good (albeit I see most of the effects come from the different wiring and inputs that then create the crisis.
You can also use a computer/phone/tablet to create, edit and amend things electronically in notes.
Finances is a difficult one with everyone different (Bipolar Disorder is one with mania's that you do crazy things when high e.g. spending splurge).
Get in the internet BUT only use officially recognised sites (NHS, Wikipedia, here) and do not take it literally from one place - from an engineering mindset you need it validated/verified from two independent sources. Remember no two people are alike and have/show behaviours/traits differently based on the same input triggers - I thought I may be Bipolar but it is now likely Autism/Aspergers.
Council is only relevant if in rented accommodation, private is another matter. Note I understand that you can get a card from NAS/Council to say you are autistic and there seems to be better things in place for air travel.
With your employer, be careful as they can still over-ride a GP note I understand but keep pushing it is your NEEDS for Mental Wellbeing (get all the company procedures on health, etc) not their wants. Do not be badgered/forced into accepting something and state you are following their rules/wants and it may still not work.
Thanks Disambiguating Cynosure - Stress/ANXIETY and Depression are high probability factors with the conditions and ensure you emphasise Stress/Anxiety to you menas the same thing. I only found out lately that the keyword with my Occupational Health is ANXIETY.
With my IT hat on, wouldn't it be nice to have this somewhere with easy access in small bite-sized chunks not buried in a page of words/lost down the forum articles.
I think NICE guidelines, (national institute for health and care excellence) should also be referred to maybe as a link?
A diagnosis should be based on the most current, research based evidence, NICE, guidelines provide this the link is below.
regular visits from your PA too. ;D
You are a star! Added PIP, Depression and PTSD. Your post read well.
P.S. I get that feeling that I'm a bit ag/hostile, and insist on my PA coming with.
Thanks for the heads up about deleting this advice. I have looked all over the web and can't find all this in one place. I also I can't think what rules it breaks?
Yes, I use that for my research, for ADHD and Autism. Added.
Thank You for not hating Me (!). I am not good at this however... but may add some things in parting.
I do not know what "ag/hostile" and "PA" mean... these may mean somethings which I should look into, which I have not... which is a jolly good reason for this Thread! (You guessed that I have PTSD undiagnosed, mwhaha. :-) ...?!)
This Thread is the sort of thing NAS should be doing, yet if there is a single page for it, it is hard to locate and may not exist (anymore). You are NOT breaking any "Rules" as far as I see, so worry not: What I meant about "Suicide" is in two ways: 1 - On this forum, usually NAS posts a link to the samaritans + a frantic "contact us!" message.
2 - In general society, at the mention of "suicide" it is a Red Light which seems to STOP ALL OTHER considerations... including causes, depression, anxiety, etc... They insist upon gaining affirmation as to "Are you contemplating suicide RIGHT NOW?" sort of thing, and it is a bally chore to get them to stop talking about that and to discuss everything else mentioned apart from that...
..This is my own experience and what I have seen anyway. I would like to help more, but am not very sociable/ trusting. If I find a page upon NAS which is a bit like this Thread then I shall post a link to it... but, apologies again, do not wait for this. (Usually there is a NAS Page which contains Links to disparate pages.) Good Luck with this Thread, still.
...Almost forgot to say... after a while, about a week, ( but this time limit keeps changing )... You will not be able to edit Your opening Post. Watch out for that.
Firstly I enjoyed your post. I think you also have a love/fascination for law too. I was hoping I would get someone who actually understood needs rather than diagnosis. My Working tax credits disability was based on need, and some evidence, and a lot of persuasion.
I wanted to find out what else is based on need rather than a diagnosis. Like the adult social services assessment.
Looking at the Equality and disability act, can I just say that I have autistic needs?
"3. Do I have a disability?To be protected under the Equality Act, you must meet the legal definition. Disability is defined as:
‘a physical or mental impairment which has a substantial and long-term adverse effect on your ability to carry out normal day-to-day activities’.
If you meet this definition you will be protected if someone discriminates against you because of your impairment.
There is no need for you to have a medically diagnosed cause for your impairment; what matters is the effect of the impairment on you. And that it is long lasting, affect normal day to day activities, do you have a physical or mental impairment" - www.disabilityrightsuk.org/understanding-equality-act-information-disabled-students
The autism guide (actually a statutory document) gives some indication that autism is not just traditional autism;
"terminology - Throughout the guidance, as in the strategy, we use the term “autism” as an umbrella term for all autistic spectrum conditions, including Asperger Syndrome.
Many people with autism also have related hidden impairments such as attention deficit hyperactivity disorder, dyspraxia, dyslexia, dyscalculia and language impairments as well as associated mental health conditions and linked impairments that may not be obvious to other people." - Statutory guidance for Local Authorities and NHS organisations to support implementation of the Adult Autism Strategy
Are we just autistic or not? The reality is autism is a "life long condition". And it's the diagnosis that is transitory. So Everyone on the planet is shrodinger autistic. You just need a diagnosis and whoa!
However, waiting is pah. I suspect darkly some do not make it to diagnosis.
I would love it to be on the main site too. Please ask them. I have asked the autism alliance, but can't remember asking NAS. Sorry I forgot. :D