Anyone here been diagnosed as *not* autistic?

Hi, having lived with the assumption that I'm autistic for about 15 months and found that assumption *really* helpful, I'm now trying to prepare for all possible outcomes of my recent evaluation.

If you've been for an evaluation and given a "no", what was it like for you?

Thanks

Parents
  • Hi there, I had my diagnostic assessment on Monday and was told I am not autistic. I had thought I was autistic for about a year. I scored 47 on the AQ and 141/200 on another neurodiverse test (I can't remember the name right now) but more than this I had so many aha! moments when I read descriptions of autism in females. So many things fell into place. I felt like I had found my tribe. This was such a comfort to me. 

    At the start of my assessment I was told I would be given the result at the end of the day with a follow up report 2-4 weeks later. I was also told only about a third of people they assessed met the criteria for autism.

    I felt there were so many things we didn't discuss during the assessment but they obviously weren't the things they were looking for. They also explained there are lots of other things that "look like" autism but aren't. 

    The process was difficult and exhausting. In the end I was told I am not autistic and given examples of why she had reached that conclusion. She also gave examples of why someone might demonstrate the same behaviour but due to another reason similar to examples you gave on another post.

    For me,  this was never about a label but about trying to understand myself and explain my difficulties. I am slowly coming to terms with it after all she is the expert. I only wish more people would discuss a non diagnosis. I really didn't even consider it as a possibility. 

    I don't know what your outcome will be but if it is a "no" you might want to look up HSP as there is a cross over with the characteristics described for both groups. 

    I'm sorry if I have rambled on, I haven't posted online before.

     Good luck!

  • Hi I'm sorry you were let down by diagnosis however I'm I a bit confused about why you would suggest a cross over and similarity to hsp? This is a form of vasculitis causing purpuric rashes and sometimes kidney damage it also affects children. 

  • HSP in this context means highly sensitive person :-)

    I'm not sure it applies to me though

  • Oh sorry! I completely missed that, I thought it was referring to Henoch-Schonlein purpura (hsp) 

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