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Anyone here been diagnosed as *not* autistic?

I'm done with Christmas Cards

Hi, having lived with the assumption that I'm autistic for about 15 months and found that assumption *really* helpful, I'm now trying to prepare for all possible outcomes of my recent evaluation.

If you've been for an evaluation and given a "no", what was it like for you?

Thanks

Parents

  • Like @NAS51403 I had my assessment on Monday (!!!) 25.02.2019. It left me completely depressed, confused, and absolutely exhausted... :-/

    My interviewer was ... an Occupational Therapist! Well, that's may be O.K. A nice lady with a tiny voice... was she afraid to ask me questions? Possibly. It looked like.

    At the end she said that it is not what they are looking for. I am able to describe different people well. I am not joking!

    In the reality I (64, female - yes I am old!) am showing the typical ASD traits: desire for having friends but never had any (!), social situations are unwelcome and confusing, prefer to work alone, socially naive (always have been!), poor eye contact, but no flapping hands (oh, yes but only when nobody can see it - just forgot to tell it to the interviewer!), hating small talk, very literal interpretation of conversations, the last one who understands jokes, loving routines and hating any interruptions, highly focused on areas of interest, some tantrums and no ability to stop these, very detail oriented, loving to build computers together :-) (OK, it's not very autistic), prefer detailed technical information over abstract, not much interest in other people, difficulty to communicate needs, ... many other traits, do not want to be bore you with these all well known things.

    O.K., after I finally will receive the report of my interviewer I will ask her: "Why do I have all these characteristics when I am so neurotypical?" Does she have any explanation for this? Well, probably she will have!

    I am completely frustrated & devastated.

    Finally I found a niche where I feel home (being on the Spectrum somewhere), and through it, I understand myself much better, and can understand my meltdowns better (for example when my routine is interrupted, or when my focus on my work is interrupted, etc), and can understand why I cannot stop these meltdowns (not able to count to three before meltdown)...

    But the niche is taken away by PROBABLY false assessment ... Sorry for taking your time with my problems :-/

  • in reply to Rhia

    Hi Rhia thanks for answering. I don't know why I didn't spot your answer earlier!

    Don't worry about taking time telling your story - this is a great place to do that.

    I can relate to a lot of what you say in your "In the reality ....." paragraph.

    What are the next steps for you? Do you get to see your assessor again?

Reply Children
  • in reply to I'm done with Christmas Cards

    Thanks "Christmas Cards" :-)

    The interviewer even faked the numbers in her written report!!! 

    And this is what I am going to write to her (it is part of a long letter):

    "Actually, looking at the numbers, you probably confused AQ score with EQ score because my score in AQ is well above 40 and my score for EQ is around 26.

    Additionally to it the total available score for Empathy Questionnaire (EQ) is 80. You are writing 60. Do you not confuse the amount of questions – 60 – with the score? The test consists of 60 questions where 20 do not count to any conclusion, only 40 play a role where you can get 2 points for a question (40 x 2 = 80), all together no more than 80. (I learned about the key to the EQ on Saturday because I couldn’t understand the results you have presented in your report – and I knew my results for the tests AQ and EQ and these did not correspond entirely with your report)."

    She has made also many other mistakes in he superficial assessment :-(

    So I am writing a letter to her plus a copy to my GP.

    In case she won't answer, or she won't correct her mistakes, I'll write to her boss. We'll see what happens.

    It is a curse to have to do with autistic people, they find mistakes all the time, and they are so mean, they show these too! Am I right? :-)

    See you later :-) Have to go! Rhia