Autism and marriage

I am a 33 year old mother of 2 step children and 2 bio children. I have recently been diagnosed with high functioning autism and have recently completed a nursing degree. I found juggling home and university life very stressful which has had a massive impact on my family. While I have always been autistic my husband is struggling to accept my diagnosis. He says my behaviours have gotten worse since being diagnosed, while I agree slightly with this statement I feel since my diagnosis  I’m allowed to be who I am and not pretend to be someone I’m not which is very exhausting. I find this really hard to understand as we have been together for 8 years and it’s only now my behaviour is a problem. The behaviours he struggles with are nit picking, I can understand this as sometimes I say mean or inappropriate things. I like rountine but can change my plans if given enough notice. I see things very black and white which makes communication difficult, however if explained correctly using direct language I do understand. Im funny with affection as I don’t like to be touched only if it’s on my terms. I do not like things sprung on me as it makes me anxious. Just lately all are problem he says are because of my autism and we are close to splitting up and getting a divorce. I feel like he has lost patience with me and I’m crying every other day. We have tried marriage counselling and are currently having family therapy but it doesn’t seem to work. I feel my partner lacks understanding, he feels I lack empathy and I don’t care for him but that’s not true. Even simple things like what to have for dinner turn into a massive argument because I’m annoyed at his lack of assertiveness and his annoyed at me managing everything.  I just don’t know what to do anymore, he says I don’t notice what wrong which I don’t I need to be told then I can address it. I feel like communication and his lack of understanding about autism is the problem but I just get told I’m the problem all the time and it’s making me paranoid. Dispute the autism I am a caring  loving person I just need guidance in the right direction as  I’m not a mind readers and don’t understand body language very well.

has anyone else been in the situation as nothing is working. I’d be grateful to here how other people have dealt with these or similar issues 

Parents
  • Hi there, I’m a 38 year old mother of 3, myself and my husband have been married for nearly 8 years, together nearly 11. I’ve recently been diagnosed ASD. Incidently I’m a RNMH ( nursing is a good career choice :-) ) I also have an acquired brain injury which I acquired nearly 12 years ago. I also find juggling work with home life and children really stressful. I really feel for you and the struggles you are facing with your husband. My husband accepts my diagnosis and when he read the assessment report said “that doctors got it spot on, that report completely explains everything about you from the 10 years we’ve lived together’ though bizarrely prior to my diagnosis, he though I was making it up!! However, what I find is that anything I do or say that is out of line with what he wants me to do or say, he blames it on my neurological stuff. Prior to my ASD diagnosis everything and anything got blamed on the brain injury but now it’s all due to Aspergers. Like I’m not allowed to have a mind of my own maybe? Any decision I make that’s not in keeping with what he thinks I should say or do is due to me having Aspergers!!!??? He says he particularly struggles with how fixed I am (mental rigidity and perseveration are also symptoms of brain injury as well as ASD so I have a double whammy on those) but honestly sometimes I think he’s just being b.minded. It feels like to him I’m just a label not a person.

Reply
  • Hi there, I’m a 38 year old mother of 3, myself and my husband have been married for nearly 8 years, together nearly 11. I’ve recently been diagnosed ASD. Incidently I’m a RNMH ( nursing is a good career choice :-) ) I also have an acquired brain injury which I acquired nearly 12 years ago. I also find juggling work with home life and children really stressful. I really feel for you and the struggles you are facing with your husband. My husband accepts my diagnosis and when he read the assessment report said “that doctors got it spot on, that report completely explains everything about you from the 10 years we’ve lived together’ though bizarrely prior to my diagnosis, he though I was making it up!! However, what I find is that anything I do or say that is out of line with what he wants me to do or say, he blames it on my neurological stuff. Prior to my ASD diagnosis everything and anything got blamed on the brain injury but now it’s all due to Aspergers. Like I’m not allowed to have a mind of my own maybe? Any decision I make that’s not in keeping with what he thinks I should say or do is due to me having Aspergers!!!??? He says he particularly struggles with how fixed I am (mental rigidity and perseveration are also symptoms of brain injury as well as ASD so I have a double whammy on those) but honestly sometimes I think he’s just being b.minded. It feels like to him I’m just a label not a person.

Children
  • That’s the other thing that stresses me out transitioning from student to nurse. I know it’s normal to be stressed and not ready but I have the added factor of my autism to factor in. Since I’m having problems at home  bevause of my autism will that happen at work, should I tell them will they understand, how much support will I get if I need it? The only problem I’ve notice at work is I become task orinated and some times forget I’m looking after a human and I have to make time to ask them if there ok, I find I click with some patients more than others but again an element of that is normal.  In a way I’m glad I was diagnosed but the negative side of that is everyone just blames the label so I totally understand where your coming from. Autism doesn’t define me it’s just part of who I am