Going through the process of getting diagnosed - worried

Hi

im new to online forum things so sorry if I shouldn’t be writing on here.

i am 38 years old and have always felt different, life felt like one big act which can be very draining. 

Recently everything seemed to come crashing down and I have had a really bad 18 months, things are getting better now but my GP who is very understanding felt that I maybe autistic. This didn’t come as a surprise as it has been mentioned to me in the past, however after hospital visits and reading documentation sent I am getting stressed.

i have been online to learn more and am finding some are saying a formal diagnosis is a relief and others are saying it is the worst thing they have ever done. I am now scared, stressed and constantly worrying about this. I am hoping some others who have been through this can help me decide if to continue or stop the process.

any help would be really appreciated 

thank you in advance 

Parents
  • My 28 year old son has just been diagnosed and I was over the moon as he finally now knows what it is after many years of trying to find out what is wrong with him. I say wrong with him because that is how it was looked at by the medical profession and himself. He has gone through so many different diagnosis's such as, depression, PTSD, Anger issues etc. When he was finally diagnosed and came out of the appointment he said he didn't feel any different other than he was angry that it hadn't been picked up on when he was a child as school was so horrible and difficult for him. As time has gone on he is now very glad of the diagnosis as he now knows what he is and can explain to people why he doesn't want to socialise with them sometimes, and why he seems strange to them. It is making his life easier and much more controllable. The best thing he has found is that he can now say, 'NO' to people and situations and not feel forced into being in a situation that he finds intolerable. All in all it was one of the best things to happen to him. He is a lot calmer and a lot more in control of his life now. As with you my son also prior to the diagnosis went through his life coming crashing down around him where he had to give up work also. Everything had to stop to figure out what was wrong with him. He actually figured out he was autistic himself hence going to the doctors to arrange testing. Now he is starting to build his life up again. 

    Only you can answer if you should continue or stop, I guess you have to figure out what would be the benefits for you to obtain the diagnosis and is it worth it? Speaking for my son it was definitely the best thing for him to do. 

Reply
  • My 28 year old son has just been diagnosed and I was over the moon as he finally now knows what it is after many years of trying to find out what is wrong with him. I say wrong with him because that is how it was looked at by the medical profession and himself. He has gone through so many different diagnosis's such as, depression, PTSD, Anger issues etc. When he was finally diagnosed and came out of the appointment he said he didn't feel any different other than he was angry that it hadn't been picked up on when he was a child as school was so horrible and difficult for him. As time has gone on he is now very glad of the diagnosis as he now knows what he is and can explain to people why he doesn't want to socialise with them sometimes, and why he seems strange to them. It is making his life easier and much more controllable. The best thing he has found is that he can now say, 'NO' to people and situations and not feel forced into being in a situation that he finds intolerable. All in all it was one of the best things to happen to him. He is a lot calmer and a lot more in control of his life now. As with you my son also prior to the diagnosis went through his life coming crashing down around him where he had to give up work also. Everything had to stop to figure out what was wrong with him. He actually figured out he was autistic himself hence going to the doctors to arrange testing. Now he is starting to build his life up again. 

    Only you can answer if you should continue or stop, I guess you have to figure out what would be the benefits for you to obtain the diagnosis and is it worth it? Speaking for my son it was definitely the best thing for him to do. 

Children
  • Thank you for your reply, hearing about others does help.

    I feel I agree with lots you have said, I struggle saying no and spend time with friends feeling so uncomfortable just wanting to be at home. I am also angry nobody has helped me before as school was a nightmare for me.

    I feel my life is one big act, everybody thinks I am quiet and very laid back which is an image I have worked hard to portray but little spo they no how stressed and anxious I really am. I found a job with a really good manager who seemed to understand me and I was very successful, unfortunately she left and my new boss just didn’t understand me and I just fell apart and ended up been too ill to work. I am so frustrated I am not able to express myself.

    This is really daft but I have said more to you about how I feel on here than I have ever said to anybody else, I guess it’s because you get it.

    thank you again x