Published on 12, July, 2020
Hi, I'm new to posting here but have been lurking for a while... I am a 50-year old woman with a long history of depression and anxiety. Aside from that, I have generally managed OK, thanks to the steadfast support of my husband. I have done interesting work, and I have done dull work. Been employed by large organisations and small ones, and also worked for myself. We weren't able to have kids, which was a source of much sadness, but have become crazy cat people instead. I have never found social interaction easy, and more than one other person in the room feels like a crowd to me, but husband is an introvert too so I'm not made to feel weird about that.
I took a major wobble in my early 40s when one of my two younger brothers died suddenly, and the whole family went a bit off the rails for a while. Whether as a result of that bereavement or not, I found myself beginning to unravel. Several years on I feel I have gone backwards rather than forwards. My hard-won social skills have deteriorated, anxiety has soared and I am struggling with confidence in my work, even when I am getting positive feedback.
Although I have friends with varying degrees of ASD, most of them are male, and it had never even begun to cross my mind that I was autistic too. Then a year or so ago I read a profile of someone in the Guardian and I was appalled to recognise myself in it. The recognition didn't bring relief, but absolute horror that it was so b****y obvious AND I am the most ludicrously introspective person it is possible to meet, and I had totally missed this great big fact about myself. I could not feel more stupid, honestly, if you pointed out to me that I'd had a third leg for 50 years without noticing. And I am certain it is a fact about myself (autism not three legs): it makes sense not just of my social struggles but of long-standing sensory sensitivities that I have largely kept to myself. (I have had relatively few meltdowns as an adult, being expert in avoidance!)
Since coming across the article I have done a lot of reading and reflection, and learned a lot about women and autism. But although this helps me see how I got to where I am, I still feel out of my depth in the here and now. More so, in fact. I feel as though my carefully constructed adult self has just reached her limit and thrown in the towel. And I don't know what to do about it. I am nervous of speaking to my doctor about it; don't know whether a referral is even possible in my area, let alone whether it is desirable. Is there a way to rebuild myself more authentically and more robustly than before, without going down a formal route of assessment and diagnosis? Or is the fear of that just the last throes of my former self?
That's a loooong intro, sorry. But if anyone has any advice to share re the what-now, I would love to hear it. What resources have you found useful? What steps would you recommend?
You can switch off those email notifications from your profile. You might need to tinker with the options to get something that works for you.
And I have just learned that my email has been filling up my spam folder with forum notifications! Oh well, at least I know now.
Hi, sorry for the slow reply. It's been one of those weeks! I love Moomins too so you're definitely not being weird :)
Hi Moomin5, I love your username. We always re-read Moominland Midwinter in winter, and have just finished it for the umpteenth time. Glad you stopped to say hello, and I hope I'm not being too weird going on about Moomins!
Hi Tom and thank you for the warm welcome! I really do feel that I have come to the right place :-) I'll check out the thread you suggest and say hi to ElephantInTheRoom.
Hi Juteweaver, I've recently realised that I am most likely autistic too. I'm a woman in my mid 30's and have suffered with anxiety since a teenager. I used to think it was social anxiety but now think that a lot of it is to do with sensory issues and my slow processing making conversations pretty hard work. Like yourself, I've been masking for a long time but just can't keep it up anymore.
I'm afraid that I can really give you much advice but just wanted to say hello :)
Hi Juteweaver - and welcome to the community. It's the only really 'sane' community I know!
Apart from the hubby bit, I have so much identification with what you say. I felt like an 'outsider' pretty much from schooldays onwards. Interesting jobs, dull jobs... and lots of each. Difficulties with social interaction - pretty much always. Mental health issues in later life, variously diagnosed as 'depression', 'anxiety disorder', 'SAD', etc. For a while, it was suspected that I had BPD - I had most of the major symptoms - but my local CMHT refused to even consider it. Pillar to post, pillar to post. Periods of relative okay-ness, followed by breakdowns. Finally, 6 years ago, I was seeing a therapist who connected up the dots and suggested that I might be on the autistic spectrum: that autism might be at the root of it all. So, I took the AQ test... and not surprisingly scored highly. I took this back to her, and she used it as the basis of a recommendation to my GP. I got the referral... and after a wait of a little over two years, I finally got the diagnosis. At age 56
It changed my life. I could go into it for you... but I think it's probably better for me to refer you to a thread started recently by ElephantInTheRoom. Ellie joined us last summer. She's in a similar situation just now. She's self-diagnosed, and is in no doubt - just as the rest of us aren't.
You've come to the right place! You'll get nothing but identification and encouragement here!
Here's the relevant thread:
Clawing out of the bear pit
See you around!
Tom