Undiagnosed but unravelling

Hi, I'm new to posting here but have been lurking for a while... I am a 50-year old woman with a long history of depression and anxiety. Aside from that, I have generally managed OK, thanks to the steadfast support of my husband. I have done interesting work, and I have done dull work. Been employed by large organisations and small ones, and also worked for myself. We weren't able to have kids, which was a source of much sadness, but have become crazy cat people instead. I have never found social interaction easy, and more than one other person in the room feels like a crowd to me, but husband is an introvert too so I'm not made to feel weird about that.

I took a major wobble in my early 40s when one of my two younger brothers died suddenly, and the whole family went a bit off the rails for a while. Whether as a result of that bereavement or not, I found myself beginning to unravel. Several years on I feel I have gone backwards rather than forwards. My hard-won social skills have deteriorated, anxiety has soared and I am struggling with confidence in my work, even when I am getting positive feedback.

Although I have friends with varying degrees of ASD, most of them are male, and it had never even begun to cross my mind that I was autistic too. Then a year or so ago I read a profile of someone in the Guardian and I was appalled to recognise myself in it. The recognition didn't bring relief, but absolute horror that it was so b****y obvious AND I am the most ludicrously introspective person it is possible to meet, and I had totally missed this great big fact about myself. I could not feel more stupid, honestly, if you pointed out to me that I'd had a third leg for 50 years without noticing. And I am certain it is a fact about myself (autism not three legs): it makes sense not just of my social struggles but of long-standing sensory sensitivities that I have largely kept to myself. (I have had relatively few meltdowns as an adult, being expert in avoidance!)

Since coming across the article I have done a lot of reading and reflection, and learned a lot about women and autism. But although this helps me see how I got to where I am, I still feel out of my depth in the here and now. More so, in fact. I feel as though my carefully constructed adult self has just reached her limit and thrown in the towel. And I don't know what to do about it. I am nervous of speaking to my doctor about it; don't know whether a referral is even possible in my area, let alone whether it is desirable. Is there a way to rebuild myself more authentically and more robustly than before, without going down a formal route of assessment and diagnosis? Or is the fear of that just the last throes of my former self?

That's a loooong intro, sorry. But if anyone has any advice to share re the what-now, I would love to hear it. What resources have you found useful? What steps would you recommend?

  • You can switch off those email notifications from your profile. You might need to tinker with the options to get something that works for you.  

  • And I have just learned that my email has been filling up my spam folder with forum notifications! Oh well, at least I know now.

  • Hi, sorry for the slow reply. It's been one of those weeks! I love Moomins too so you're definitely not being weird :) 

  • Hi Moomin5, I love your username. We always re-read Moominland Midwinter in winter, and have just finished it for the umpteenth time. Glad you stopped to say hello, and I hope I'm not being too weird going on about Moomins!

  • Hi Tom and thank you for the warm welcome! I really do feel that I have come to the right place :-) I'll check out the thread you suggest and say hi to ElephantInTheRoom.

  • Hi Juteweaver, I've recently realised that I am most likely autistic too. I'm a woman in my mid 30's and have suffered with anxiety since a teenager. I used to think it was social anxiety but now think that a lot of it is to do with sensory issues and my slow processing making conversations pretty hard work.  Like yourself, I've been masking for a long time but just can't keep it up anymore.

    I'm afraid that I can really give you much advice but just wanted to say hello :) 

  • Hi Juteweaver - and welcome to the community.  It's the only really 'sane' community I know!

    Apart from the hubby bit, I have so much identification with what you say.  I felt like an 'outsider' pretty much from schooldays onwards.  Interesting jobs, dull jobs... and lots of each.  Difficulties with social interaction - pretty much always.  Mental health issues in later life, variously diagnosed as 'depression', 'anxiety disorder', 'SAD', etc.  For a while, it was suspected that I had BPD - I had most of the major symptoms - but my local CMHT refused to even consider it.  Pillar to post, pillar to post.  Periods of relative okay-ness, followed by breakdowns.  Finally, 6 years ago, I was seeing a therapist who connected up the dots and suggested that I might be on the autistic spectrum: that autism might be at the root of it all.  So, I took the AQ test... and not surprisingly scored highly.  I took this back to her, and she used it as the basis of a recommendation to my GP.  I got the referral... and after a wait of a little over two years, I finally got the diagnosis.  At age 56

    It changed my life.  I could go into it for you... but I think it's probably better for me to refer you to a thread started recently by ElephantInTheRoom.  Ellie joined us last summer.  She's in a similar situation just now.  She's self-diagnosed, and is in no doubt - just as the rest of us aren't.

    You've come to the right place!  You'll get nothing but identification and encouragement here!

    Here's the relevant thread:

    Clawing out of the bear pit

    See you around!

    Tom