Seeking perspective: Nervous about my June assessment after an NHS rejection

Hi everyone,

I'm looking for some support. I have a private autism assessment coming up soon after being rejected by the NHS (ANDS). They felt I didn't fit some of the more "classic" traits, particularly rigid routines, and many of my difficulties were attributed to anxiety based on my GP records.

This has left me with a lot of doubts about whether I'm actually autistic. While I do experience anxiety, I don't feel it fully explains my lifelong sensory issues, social difficulties, executive functioning struggles, and difficulties coping with change.

I'm also a woman, and I've wondered whether female presentations of autism were fully considered, as I've read that autism in women can sometimes present differently from traditional stereotypes.

A few questions:

• Has anyone been diagnosed without obvious rigid routines or stereotypical special interests?

• If you're a woman diagnosed later in life, were your traits ever mistaken for anxiety or something else?

• What should I expect during an adult autism assessment, and is there anything you wish you'd known beforehand?

Any advice or experiences would be greatly appreciated. Thank you.

Parents
  • i have looked at this and it seems that you need to meet the criteria in the behavioural group which is the repetitive interests and stereotyped behaviour. This includes sensory. Now you don't need to score highly, but you need to meet the criteria as it is based on three elements and you need two from that criteria. From what you have written you may get 1 point for sensory which is in this section and for being inflexible may award you to perhaps 1 point, so it seems that there may be a chance.

    Unusual Sensory Interest 

     Hand and Finger and Other Complex Mannerisms

     Excessive Interest in Unusual or Highly Specific Topics/ Objects or Repetitive Behaviours

     Compulsions or Rituals

    www.autism.org.uk/.../criteria-and-tools-used-in-an-autism-assessment

Reply
  • i have looked at this and it seems that you need to meet the criteria in the behavioural group which is the repetitive interests and stereotyped behaviour. This includes sensory. Now you don't need to score highly, but you need to meet the criteria as it is based on three elements and you need two from that criteria. From what you have written you may get 1 point for sensory which is in this section and for being inflexible may award you to perhaps 1 point, so it seems that there may be a chance.

    Unusual Sensory Interest 

     Hand and Finger and Other Complex Mannerisms

     Excessive Interest in Unusual or Highly Specific Topics/ Objects or Repetitive Behaviours

     Compulsions or Rituals

    www.autism.org.uk/.../criteria-and-tools-used-in-an-autism-assessment

Children
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