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Saddness after diagnosis

Ma.ra.

Dear All,

I wish for your support. I am a late diagnosed women,42, and yesterday I went to therapy and told everything I’ve learnt about autism/my autism very proudly and my therapist was very happy but also said I am going to deal with this during my whole life. I got shocked. I thought we figure out the neurotypical world and our autism and build some switch modes when we need. I thought it is like a Master degree and then you are good to go. But as the way I understood my therapist, it is gonna be a long thingy. Would you be so kind to write me positive things cause I got very very sad. Disappointed My friendships are very new and I don t wanna overwhelm them and also I tried to start to explain my wiring but they somehow invalidate this and the struggle and the sadness and it is not helping me. Thanks so much even for like an emoji now!

Parents

  • When were you diagnosed? Also do you live in an area where there is a lot of neurological diversity support? 

  • in reply to kiwipip

    Hello Kiwipip and all!

    We don’t really have online community support here, I’m Hungarian, from Budapest. (so I really hope I can stay here, I’ve read the rules of the community here and it is not written that I have to be from the UK which btw I adore since childhood!) So here there are only two Facebook groups, run by civilians, but I want to stay anonymous, also they are not professonals!

    We have 2–3 civil organizations that run some free autistic clubs and events. I will join one next week! I wish someone could come with me! It sounds like a major coming out for me to attend an event organized for auti people. State support is basically off — they don’t have enough staff to run it properly, and they even canceled the waiting lists to get in. What can I say? woman shrugging

    Some new private support is starting to appear. Trained therapists are forming clinics now             ( I feel the same neurotypical bias what you mentioned but I wanna understand my brain and wanna have a tribe and friends so I pay See no evil), and there are 3 places offering group therapy. I will join at the end of January. And refer back here how it is going on! 

    Resources are very limited, and I was diagnosed at 42 — honestly, just by luck. Here, the focus is mostly on kids and parents. I am in therapy since I was 24 and they somehow missed this part. Joy

    I was so happy when I found this online community, because I had nobody to ask for help. My therapist isn’t specialized in autism; he offered temporary support until I can find proper help. The first available one-on-one therapy appointment is in the spring.

    But I like us! I know other nd people and I think we are cute! Grin

  • in reply to Ma.ra.

    ooo ok I well welcome! It’s nice to meet a Hungarian it’s one of my favourite countries and sorry I didn’t mean to pry - I was more wondering where about in the UK you are based as there are a variety of support in different areas and some areas seem to lack the same level of support as other parts. Do you have any friends or family locally? 

  • in reply to kiwipip

    Thanks so much  ! Good to hear you like my country! Butterfly

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