Help

Hello,

my daughter was diagnosed in march. We moved her to a new school which has really helped with her shutdowns. How we are in the summer holidays things have taken a backwards step. We have tried to keep an element of structure to her day and most of the time during the day she is happy and engaging, however, it seems like the last 20 mins before she goes to sleep she gets upset. She can’t explain why she feels like this. Sometimes it’s an hour or two of chatting and hugging, other times she gets violent. During this time whatever we try to suggest to help (cold drinks, hugs, weighted blanket, car ride, play a game, ) doesn’t.. then suddenly after say an hour she says she’s going to bed and goes to sleep.. 

We don’t understand what starts or stops the shutdowns 

can anyone help?

thanks

john

Parents
  • Hello John

    Sorry to hear that your daughter is finding it challenging to settle at bedtime, it’s hard to witness them being in distress and it’s hard for parents and caregivers too.

    This is something my son has struggled with, once settled he rarely wakes but it’s very difficult for him to settle. I think bedtimes are a time for most of us to reflect on the day or even try to predict what tomorrow will bring. 

    I found lying with my son and using distraction helped, I would talk about things they might find amusing or interesting. I found trying to talk about what it was that was causing him discomfort was not helpful (to him). He was not able to understand why or what had even caused him to feel “sad” in his words. 

    Prior to bedtime we found engaging with him in some calm play was also helpful for example playing with modelling clay, colouring, drawing or even some free building with Lego. I think this helped him to know that bedtime was approaching.

    This is not medical advice but just wanted to let you know what has been helpful for us. We also use as and when needed a completely natural gummie that helps produce Melatonin naturally which has really helped, it may be worth looking into and talking to your Gp but as I said it’s been beneficial for my son. 

    During the school holidays my son has been pretty much worry free but his struggles start with the build up to school and then when he is back in school there is a noticeable difference in his wellbeing and anxiety.

    We had items that we used to make him comfortable in bed also and it became a necessity. We used a hot water bottle, an audible sleep mask with brown noise playing on it, weighted blanket, lots of his soft teddies and a quiet fidget toy. 

    It is tough going but you will find a way to manage I’m sure. Perhaps journal each bedtime to be able to look back and see what worked and what was unhelpful, then you can piece it together and have a reliable sleep plan.

    I wish you well

    Take5

Reply
  • Hello John

    Sorry to hear that your daughter is finding it challenging to settle at bedtime, it’s hard to witness them being in distress and it’s hard for parents and caregivers too.

    This is something my son has struggled with, once settled he rarely wakes but it’s very difficult for him to settle. I think bedtimes are a time for most of us to reflect on the day or even try to predict what tomorrow will bring. 

    I found lying with my son and using distraction helped, I would talk about things they might find amusing or interesting. I found trying to talk about what it was that was causing him discomfort was not helpful (to him). He was not able to understand why or what had even caused him to feel “sad” in his words. 

    Prior to bedtime we found engaging with him in some calm play was also helpful for example playing with modelling clay, colouring, drawing or even some free building with Lego. I think this helped him to know that bedtime was approaching.

    This is not medical advice but just wanted to let you know what has been helpful for us. We also use as and when needed a completely natural gummie that helps produce Melatonin naturally which has really helped, it may be worth looking into and talking to your Gp but as I said it’s been beneficial for my son. 

    During the school holidays my son has been pretty much worry free but his struggles start with the build up to school and then when he is back in school there is a noticeable difference in his wellbeing and anxiety.

    We had items that we used to make him comfortable in bed also and it became a necessity. We used a hot water bottle, an audible sleep mask with brown noise playing on it, weighted blanket, lots of his soft teddies and a quiet fidget toy. 

    It is tough going but you will find a way to manage I’m sure. Perhaps journal each bedtime to be able to look back and see what worked and what was unhelpful, then you can piece it together and have a reliable sleep plan.

    I wish you well

    Take5

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