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John1234John

Hello,

my daughter was diagnosed in march. We moved her to a new school which has really helped with her shutdowns. How we are in the summer holidays things have taken a backwards step. We have tried to keep an element of structure to her day and most of the time during the day she is happy and engaging, however, it seems like the last 20 mins before she goes to sleep she gets upset. She can’t explain why she feels like this. Sometimes it’s an hour or two of chatting and hugging, other times she gets violent. During this time whatever we try to suggest to help (cold drinks, hugs, weighted blanket, car ride, play a game, ) doesn’t.. then suddenly after say an hour she says she’s going to bed and goes to sleep.. 

We don’t understand what starts or stops the shutdowns 

can anyone help?

thanks

john

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  • John1234John said:
    We don’t understand what starts or stops the shutdowns 

    It may be worth keeping a detailed diary of the hour or so before bedtime and see what common things happen each time.

    Maybe washing and brushing teeth could be done a while earlier as these can be stressers, maybe leaving her alone for longer can identify if there is an element of separation anxiety etc - basically eliminating things systematically to see which ones have positive or negative effects should help.

    It may also be the bed itself or lack of light that are triggers - maybe ask if she wants to change anything in her room to see if she is positive about one or more aspect.

    If you cannot break the inertia and association she has with bedtime = stress time then consider some light medication to help her sleep. Your GP should be able to advise what is suitable for her (there are plenty of natural options so drugs are not needed I suspect).

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