Late diagnosed

Hello

I've just been diagnosed with Autism but told my family about a year ago I was going for it, got my adhd diagnosis April 2024. I don't know if it's just me but I feel my family have been so dismissive, to me this is life changing, I've had poor mental health my whole life with quite serious epsiodes that my famly know about and the person that has reacted the absolute worst is my own mother, people who reacted the best, my undiagnosed neurodivergent friends that Ive known since childhood.

I've had alot of comments like 'everyone has problems' 'everyone is a little bit ADHD' to purely just ignoring it, like one perosn I know said 'Ha! interesting" like am I going mad? I don't think, in fact I know if someone opened up to me and told me that I would see the enormatity of it. My Mum also won't acknowledge my comments about my daugher having it either. We just had an argument as I opened up and said she was upsetting me with her lack of interest and she flew off the handle and said everyone has problems and that why am I always so sensitive and I havent even asked how she is lately. Some people I've told and theyve simply not got back to me.

Is this a common occurance?

Parents
  • Yes, I'm in 60s and recently diagnosed. I wonder if some of the reaction is generational ? Those of us who have had a diagnosis late in life seem to have to try and wrap our lives into a new autistic framework, it's a lot. Those around don't all get it. Some areas feel a relief, " ..so maybe that accounts for the melt downs and feeling burnt out" some of what I feel is regretful, if only I could have explained why some situations were so scary, my parents apparent inconsistencies for example, from being mostly logical to being evangelistic christians and weird. But they have passed on so no conversations now possible.

    Everyone's situation is different but I think maybe try and say to those that matter what the real you feels like, because none of us knows how long we stay on this earth and parents usually pass before us, so if its important for them to understand maybe write it down as a letter ? Something that can be digested in perhaps a quiet place, in their own time.

Reply
  • Yes, I'm in 60s and recently diagnosed. I wonder if some of the reaction is generational ? Those of us who have had a diagnosis late in life seem to have to try and wrap our lives into a new autistic framework, it's a lot. Those around don't all get it. Some areas feel a relief, " ..so maybe that accounts for the melt downs and feeling burnt out" some of what I feel is regretful, if only I could have explained why some situations were so scary, my parents apparent inconsistencies for example, from being mostly logical to being evangelistic christians and weird. But they have passed on so no conversations now possible.

    Everyone's situation is different but I think maybe try and say to those that matter what the real you feels like, because none of us knows how long we stay on this earth and parents usually pass before us, so if its important for them to understand maybe write it down as a letter ? Something that can be digested in perhaps a quiet place, in their own time.

Children
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