Late Diagnosis

I am very new to this so I have no idea what I'm really doing. 

I'm a 22 year old female who got diagnosed with autism last May. Autism was not anything I had considered before, despite many online tests telling me otherwise I didn't bat an eyelid at them and assumed I cant be autistic. I have been in therapy since I was 16 (inconsecutively due to wait times) for anxiety and depression but I always felt different and that there was something else. Last year my current therapist told me she thinks I have autism and with my permission she would like me to get diagnosed, I was desperate for an answer so of course I said yes and in May I was told. 

I feel like since being diagnosed my eyes have been opened and a lot of things makes so much sense but it has also been a very hard pill for me to swallow. I sometimes see autism as a burden and confuse myself into a fit of who I am. What part of me is me and what part is because Im autistic? Im trying to change my mindset to I am me because Im autistic but sometimes this doesnt help either. Sometimes I will cry for hours because I dont want to be autistic and I feel like no one arounds me understands as I dont know anyone else autistic. I have always struggled with friendships and currently have none which often makes me feel lonely and frustrated, and I blame autism. I blame autism for a lot of things and think if I was neurotypical I wouldnt feel this way, but I dont know how to stop blaming autism and stop seeing it as a burden on my life. 

I am currently undergoing an apprenticeship and I find myself really struggling with the style of work as it is very much self-taught and I often find my brain cannot fathom learning on its own, again I dont know if this is because im autistic but I find myself blaming autism all over again. I know im smart enough to do the work but then I sit frustrated for hours staring at a blank screen because I dont know how to form a sentence and I dont know how to change that. I went through education, and came out with good grades but I struggled all the way through espeically when it came to writting down my knowledge. Is this common in autism? 

I dont even know if this makes sense or if anyone will be able to relate to how I feel, I think because I have just been diagnosed this is all still new to me and its a big change that I dont know how to manage that. Sorry for the long post its very hard for me to communicate how I feel about being diagnosed and I want to clarify I never regret being diagnosed as it has helped answer a lot of everyday questions and made me a lot less hard on myself. It did feel like a weight off my shoulders being diagnosed I just now feel I dont know what to do with the information. 

Thank you if you read to the end, I would love an advise or opinions.  

Parents
  • Hi and welcome to the community! I’m female in my middle thirties, not diagnosed. When I was a kid some teachers suggested to my mom I might be autistic (I realized it was because of my selective mutism I had at school) but my mom just laughed it off and ignored. I felt very much like you at your age with the difference that I had no idea i might be autistic and I was super harsh on myself. When I asked my mom if I’m autistic she got angry and denied that. Now I feel like I wish I knew sooner. I’m still on my way I can say. I wish you find support and connections here. 

    as for issues writing down your thoughts - we all are different, having various spikey skill sets, so I would say it might be just you, but the fact that autism is correlated with spikey skill sets it may increase the difference between what we are good in and what we struggle with. I always struggled to use formulas. Not to understand them, but to remember the symbols and their meaning in physics and math. 

Reply
  • Hi and welcome to the community! I’m female in my middle thirties, not diagnosed. When I was a kid some teachers suggested to my mom I might be autistic (I realized it was because of my selective mutism I had at school) but my mom just laughed it off and ignored. I felt very much like you at your age with the difference that I had no idea i might be autistic and I was super harsh on myself. When I asked my mom if I’m autistic she got angry and denied that. Now I feel like I wish I knew sooner. I’m still on my way I can say. I wish you find support and connections here. 

    as for issues writing down your thoughts - we all are different, having various spikey skill sets, so I would say it might be just you, but the fact that autism is correlated with spikey skill sets it may increase the difference between what we are good in and what we struggle with. I always struggled to use formulas. Not to understand them, but to remember the symbols and their meaning in physics and math. 

Children
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