Please HELP! Finding people to talk to about my experiences.

Hi all. I honestly just need to vent and have absolutely no one who gets it and hoping someone here might. 

Some background: I was diagnosed with ADHD when I was 21 and been taking medication for that a bit after. I was starting to feel a bit better, started university and doing well there. So, I recently went to Canada alone to visit family. I honestly thought I had prepared everything possible for my brain. I packed so many activities for the plane and I knew the family quite well since we’ve visited 2 times before as a kid. But only 4 hours into the plane journey and anxiety hit. And oh my goodness, this trip was not it. AT ALL!! I was constantly anxious, like out of body. I could not for the life of me relax, even with family. I constantly felt like I had to hide my anxiety and true feelings from them. I really missed my mum, her presence. And I missed my room and my tiny town - all stuff that I was (kind of) excited to leave for a little bit. 

Now, why am I here on a website for autism? My doctor who suggested screening for ADHD, mentioned briefly autism to me. I could see some things that I identified with before this trip but on the internet there is so much information and became so confused. Like, with those images that show that autism and ADHD overlaps. So then I kept convincing myself that I probably don’t have autism because of that. You know, that I’m thinking too much. 

Anyways, in desperation after this trip I was doing some thinking and reading autistic criteria (now this always makes me nervous telling people because I never want people to think that I think of autism lightly and throw it around casually) and I just couldn’t help recognize the signs of autistic burnout in myself especially after this trip. Now, what I’m experiencing right now (increased anxiety, hypersensitive, anger bursts - sorry mum - and tiredness), Ive experienced a few times in life. When things were mounting because of GCSE exams. I used to get so anxious about exams and friends, the doctor just said it was anxiety. I could not keep friends and the one friend I did have at the beginning of secondary school, I managed to ruin the whole thing so I ended up with three different groups until school was done. The second time the anxiety got worse was when we were moving house and had to live in a tiny hotel room for like 4 months and that was during the A Level year. I even passed out (but at least I passed my driving test the next day, I guess). I always hated moving house and I remember always having to be off school because I got dizzy spells and felt I’ll during those times. And then before lockdown, I kept putting so much pressure on myself to fit in with the people I was hanging out with, to keep up with what I was told to do.

ah I don’t even know if this makes any sense. There are even more experiences that I’ve had that I can’t even fit on here. 

I don’t know how to navigate the potential of having autism. From what I read on here, the experiences I face feel so well explained by autism. I’m always scared of appearing like another person who thinks they have autism. It’s exactly how I felt about ADHD too. 

I really just want to find people who might have had similar experiences to me. Some people to talk about the things I’m going through because family simply do not understand neurodiversity and I feel trapped without anyone to talk to. 

Parents
  • Dear Anna,

    I have literally just joined this site and your wonderfully open and honest post is the first I have read thank you!

    I am a 56 YO engineer and father of 5 children; 3 of whom are diagnosed with autism.

    My entire life has been one long panic attack characterized by relationship carnage and narcissism. But recently my inner world has been transformed and I exist in a state of permanent bliss and deep equanimity.

    There is so much I feel I could tell you to help and if you would like I will be glad to help.

    For now I just want you to know that your feelings of anxiety are a normal reaction to an abnormal situation. There is nothing wrong with you at all. There is nothing wrong with your genes. You are very much not alone.

    Ashley

Reply
  • Dear Anna,

    I have literally just joined this site and your wonderfully open and honest post is the first I have read thank you!

    I am a 56 YO engineer and father of 5 children; 3 of whom are diagnosed with autism.

    My entire life has been one long panic attack characterized by relationship carnage and narcissism. But recently my inner world has been transformed and I exist in a state of permanent bliss and deep equanimity.

    There is so much I feel I could tell you to help and if you would like I will be glad to help.

    For now I just want you to know that your feelings of anxiety are a normal reaction to an abnormal situation. There is nothing wrong with you at all. There is nothing wrong with your genes. You are very much not alone.

    Ashley

Children
  • Thank you so much for this kind message. I so appreciate it! It’s been so hard navigating all these feelings and so hard not being able to reach the things that I see everyone around me my age reaching. It scares me honestly. See, it’s hard at the moment where every sensory input pushes me over but I so desperately want to do and see so many things. I want this burnout to end because they always have eventually - I’m just impatient! 

    I would really appreciate your insights. I want to understand and how to create a life that works so I’m not constantly going through these cycles of burnout. Thank you so much!