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Sensory discomfort genitals

NAS88168

Hello,

I wondered if anyone has been in a similar position and has any advice.

My daughter (5) is an autistic ADHDer. She has massive sensory discomfort from clothing generally, but over the last few weeks she is increasingly uncomfortable even when naked.

She has said today she doesn’t like her vulva as there are bits that aren’t flat and flush to her body. 

We have always used correct a anatomical terms and hopefully created a open dialogue about bodies without shame. She just doesn’t like the wet sensation or feel. I’m at a total loss! 

Her self injurious behaviours are getting worse and she has threatened to ‘rip it off’. We have a CAHMS in 3 weeks but thought someone may have experienced the same. 

Thanks 

Parents

  • Hi - sorry I am late to this thread. I am 48 now, but when I was your daughter's age I went through what sounds like a similar experience. (Although my mother was not so caring!). Obviously I can only speak for myself, but the problem was entirely physical - nothing to do with me not liking how I looked. It really, really stung and used to keep me awake at night. I associated the pain with having bits stick out because that made them seem more vulnerable. The intensity of the pain faded, but I still have skin allergies in that part of my body that I don't have elsewhere, so I have to be very careful what products I use. All I can recommend is emphasising to your daughter that this is a delicate, but very important part of her body. Bathe very gently without soaps and speak to your gp about soothing creams. 

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  • Hi - sorry I am late to this thread. I am 48 now, but when I was your daughter's age I went through what sounds like a similar experience. (Although my mother was not so caring!). Obviously I can only speak for myself, but the problem was entirely physical - nothing to do with me not liking how I looked. It really, really stung and used to keep me awake at night. I associated the pain with having bits stick out because that made them seem more vulnerable. The intensity of the pain faded, but I still have skin allergies in that part of my body that I don't have elsewhere, so I have to be very careful what products I use. All I can recommend is emphasising to your daughter that this is a delicate, but very important part of her body. Bathe very gently without soaps and speak to your gp about soothing creams. 

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