School Refusal in Socially Anxious teen girl

I'm an autistic mum with a daughter being assessed for autism. She suffers with OCD, intense social anxiety, perfectionism, can only understand very clear, literal speech and needs a strong routine - any changes throw her into a panic. She'sbeen anxious in school for years and struggles to get on with other children. She's very sensitive - emotional music makes her cry, she can't tolerate the sound of people eating, for example and she gets very embarassed about having emotional outbursts in front of other people.

Moving to secondary school - she's now in year 8 - she's suffering panic attacks about going into school in the mornings as well as before bed the night before school. This mostly relates to social anxieties around PE and break times, as well as during class. She also feels a huge pressure to study very hard, which is making her over-tired. She's having panic attacks at school that are making social difficulties even worse as she's making a scene, which is making it harder for her to feel like she can fit in. She has one friend, who is much like her, but this friend is often off school ill. With other girls, she says they just all go silent when she sits with them. She doesn't know what to say to them and they don't know what to say to her. She finds this intolerable and has described feelings of panicked paranoia about what they're thinking about her. She's now refusing to go to school and is getting behind with her work, which is causing further anxiety.

At what point can I accept that home schooling is a good option? Other family members are insistent that she keeps pushing on through. I feel that doing so is traumatising her. Her most recent night time meltdown lasted four hours, from 10pm to 2am, during which time she screamed and wailed at the top of her voice for almost the entire time, she looked panicked, frantic, like a cornered animal and just repeated over and over 'I want to die, I want to die'.

Personally, I can't understand how home schooling is not the logical response to this. But I'm also autistic and feel her pain acutely. I can't handle how upset she is. I can't think clearly. Does anyone have experience of helping a child recover from this level of acute anxiety about school? Are there any agencies who are qualified to help her get over this or is the simplest solution just to take away her pain and let her study with an online school, followed by gently supporting her in learning how to make good social relationships in her own time and at her own pace?

Any thoughts appreciated!

Parents
  • Hi, my 13 year old daughter has been home from school  since just after Christmas.  She has also been getting panic attacks and struggling  with anxiety,  CAHMs think she may be autistic, she is now waiting to start the diagnosis  period.  We have been in contact with our school nurse and they have been great with helping my daughter and communicating with us and the school.  If you haven't  already done this I would  really recommend. 

Reply
  • Hi, my 13 year old daughter has been home from school  since just after Christmas.  She has also been getting panic attacks and struggling  with anxiety,  CAHMs think she may be autistic, she is now waiting to start the diagnosis  period.  We have been in contact with our school nurse and they have been great with helping my daughter and communicating with us and the school.  If you haven't  already done this I would  really recommend. 

Children
  • Thanks, glad that's helping you, it's a stressful time isn't it! We're trying phone based cbt for dealing with panic via the charity 'No Panic', but this isn't helping at all to be honest. We're on the CAMHS waiting list for what that's worth. We've been having meetings with the school send team and with her form tutor and pastoral lead and they've proposed all sorts of adaptations that are theoretically possible.  We've tried stripping school back to bare minimum, so as many stress points are removed as possible, but as yet, this still isn't working for her. We won't force her into school mid-panic - that's only going to make things worse - and we can't persuade her to go without triggering a panic. The school environment and the school day are - by their very nature - completely filled with situations she can't handle.

    We're giving it one last try with an even more stripped back format - support catching up with core subjects at home + option to try for one lesson in school each week. If this doesn't work, we will pull her out and begin home educating. One family member is still extremely opposed to us doing this, but she can't argue that we haven't tried.