problems after restraint

hi all, my name is tracey and i am a mother to 6 children. my youngest 2 children are still living at home, they are nat who is 19 and dion who is 14. my son dion has downs syndrome and was diagnosed 3 years ago asd, i had been battling for 6 years for his diagnosis. dion has hardly any speech but uses makaton quite well, he has severe developmental delay. dion has always been the kindest of children, cuddly and friendly, does as he is told and a real star in our lives....but then....5 weeks ago there was a minor incident at school during changing in p.e lesson, the incident snowballed and as the school said "there were errors in the handling of the incident" the end result being the restraint of my son. since this day our whole life has changed and my son has changed also. he is anxious and nervous and has had a few more meltdowns. last night the lady that looks after him 2 nights a month phoned as he was having a meltdown, she admitted fueling the situation by shouting at him and then crying. i feel like just keeping my son with me all  the time, am i the only person that can see the early warning signs? i have told these professsionals triggers, things that calm dion quickly etc but they just do there own thing. i can see us becoming isolated from the world as these different parts of his life are falling apart. could do with some advice from those that really understand, you parents out there that reallyunderstand...

Parents
  • Hi, i know what you are saying about no trust in those looking after him and you end up feeling guilty sending them there and a ball of anxiety yourself wondering what is next, not to mention the heart wrenching you go through seeing them deteriorate.

    I think you are doing the right thing easing him v.gently back in. Have you thought of putting your request for the incident report in writing and copying the supervising education body in plus mentioning all the info you have provided and asking for a response explaining why it is not utilised. Explain what you have said about how it is affecting him mentally and with the loss of respite affecting the quality of life of you both. The NAS helpline can also give great advice about these kind of problems. 

    Keep going and you wil get there.

    Best wishes

Reply
  • Hi, i know what you are saying about no trust in those looking after him and you end up feeling guilty sending them there and a ball of anxiety yourself wondering what is next, not to mention the heart wrenching you go through seeing them deteriorate.

    I think you are doing the right thing easing him v.gently back in. Have you thought of putting your request for the incident report in writing and copying the supervising education body in plus mentioning all the info you have provided and asking for a response explaining why it is not utilised. Explain what you have said about how it is affecting him mentally and with the loss of respite affecting the quality of life of you both. The NAS helpline can also give great advice about these kind of problems. 

    Keep going and you wil get there.

    Best wishes

Children
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