Have any parents abandoned religion because of a child with ASD?

I once encountered a story about a couple who were devout Christians, and also active in preaching Christianity, who ended up having a severely autistic son. This created endless stress and heartache both for himself and his parents. Over time this made them question many aspects of religion. They could accept that God allowed physical disabilities to exist, but had difficulty in accepting how God could allow severe mental health conditions and severe cases of autism to exist. Explanations put forward by church officials were just unconvincing.

As faith and trust in God and Christianity waned the parents turned to studying medicine and genetics. Eventually they abandoned religion altogether and embraced science. They strongly believed that if genes responsible for autism and mental health conditions could be identitied and corrected using gene therapy then it should be carried out. Gene therapy was just the next stage on the road of medicine from organ transplants.

Unfortunately the situation with their son turned so bad it was unbearable. Now a young adult he was severely depressed and hated himself. Following a very difficult mutual decision his life was ended at Dignitas. A blood sample has been saved for use in genetic research in the future.

The parents are now staunch atheists who believe that religious people and organisations opposed to genetic modification of humans are immoral and corrupt when it has the potential to end much human suffering.

Have any parents abandoned religion because of a child with ASD?

Parents
  • Former Member
    Former Member

    So sad. 

    We belong to an ultra-liberal faith community and expect we will struggle at gatherings now because our setting safe boundaries and routines for SD16 will be labelled controlling. We were already a bit suspect because SD16 has had food issues and we've often gone off site to get food for her to eat.

    Has my faith been tested by any of the diagnostic journey (my first diagnosis was at 14 with dyslexia) with me or my family? Severe bouts of depression challenge it, but I'm a fan of the symbolism of "dark nighttime of the soul" which recognises the empty times as still part of a spiritual journey.

    I've just recently participated in a study on euthanasia in unbearable mental suffering and I'm certain we need to have more conversations about mental health treatments including ECT and trial drugs such as Ketamine for treatment resistant depression.

    On the idea of gene therapy: What if curing depression/autism removes genius? We have a lot of very intelligent people in my family of origin, and they've been successful with recurrent depression. We call it the price of being gifted

Reply
  • Former Member
    Former Member

    So sad. 

    We belong to an ultra-liberal faith community and expect we will struggle at gatherings now because our setting safe boundaries and routines for SD16 will be labelled controlling. We were already a bit suspect because SD16 has had food issues and we've often gone off site to get food for her to eat.

    Has my faith been tested by any of the diagnostic journey (my first diagnosis was at 14 with dyslexia) with me or my family? Severe bouts of depression challenge it, but I'm a fan of the symbolism of "dark nighttime of the soul" which recognises the empty times as still part of a spiritual journey.

    I've just recently participated in a study on euthanasia in unbearable mental suffering and I'm certain we need to have more conversations about mental health treatments including ECT and trial drugs such as Ketamine for treatment resistant depression.

    On the idea of gene therapy: What if curing depression/autism removes genius? We have a lot of very intelligent people in my family of origin, and they've been successful with recurrent depression. We call it the price of being gifted

Children
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