Hardly anyone bothers with my daughter with asd

Hi Lindy, Thanks for taking the time to send such a kind reply. It means a lot. I hope people show you similar kindness and understanding. You are right that often the easiest way is to stick to your own little family unit, but it can feel lonely sometimes. My daughter with ASD doesnt attend school at the moment due to severe separation anxiety and a very frightening experience of school (another long story!!) so I don't have a lot of time to myself to focus on other things or to regain some emotional energy which feels like it's running out fast at times!! But, like yourself, our love for our children is so strong that we keep on going. They are so precious and no one can show them the same devotion and understanding that we can as their mum or dad.

I hope you can have a nice weekend and know that I am sending you kind thoughts and wishe.

Hi, your so right it does make you feel like your alone in this situation, people take for granted the things they do on a daily basis , without sparing a thought for those who struggle.i feel for you that your health has suffered, we sometimes think we are invincible and relativley we struggle on , having to cope as there seems to be no other way , we have to stay  strong willed to carry on for our children . .but you must also take time for yourself.. i too dont bother with friends most of them have just drifted away and as you say when the kids where younger, certain kids took advantage as they knew how vunerable my son was. .. its a mothers instinct to protect there child and you had every right to feel aggrieved.  your husband seems very wise and hes right real friends would not behave in that manner, so like i said before we have no friends around us either, sometimes its lonely but then on the other hand i feel i dont have to answer  those akward questions anymore about why doesnt your son do this and that!!!.. we are in our own family bubble, its not easy but you know , look after your little family, your a great person , you obviously  care very much for them , they are very lucky to have such caring parents.. god bless your father it is impossible not to worry , you wouldnt be human if you didnt .. im sure there are many more people out there with simelar stories  to ours.. please try not to feel alone .would be nice to hear from you again..

I completely understand what you are saying. It does feel as though we are on our own with our children and people leave us by the wayside. even my in laws conveniently get on with their life, forgetting that we have 3 children (daughter has ASD) and all have other serious health problems and emotional difficulties. My health has suffered so much and it scares me that they're all completely dependent on me so I have to struggle on. 

I have no friends around us....long story!! They seemed to feel it was ok for my disabled son to be bullied by their kids and I had no right to feel aggrieved. My husband points out that they were not real friends if they could behave in this way. and so the isolation continues, worsens and it feels awful. My father also has advanced cancer and this is really worrying. Life is so hard and it's difficult to feel like people care. 

Hi i understand how you must feel. my husband has rather a large family and no one bothers with us at all.  i have a 16 yr old with asd and life has been so difficult, most of my friends never really understood , they still dont !!,my son wasn`t  diagnosed  tlll he was 14. i also have a 22 yr old with anxiety and every day is another step to helping him as he has no one around him , apart from us ,for support ..  he was bullied from yr 7 right up to when he left , and all along he needed support for his mental health issues, but unfortunately never got it.. please dont give up, , you are not alone , i too understand how hurtful it feels to be shoved to one side!!. my mother is battling cancer and she was my rock, my life is tough at the moment trying to juggle my sons and too care for her.. but i keep going, cos its what we mums do!!, try talking to her godparents and remind them that they took on a commitment to be there for your daughter for the rest of her life, so they should appreciate the fact that they should spend some special time with her . i have spent the last 20 yrs up in arms with my mother &father in law who says if i wanted them to see the kids then i should have taken them to there house ?? my son was diagnosed with asd 2 yr ago , my husband went and told all the family, no one has contacted us and say we have got a problem cos we dont bother with them?.. now you can see only slightly what we have been up against. and to make it worse we dont drive so i feel so isolated sometimes.. it can also feel very lonely.. im sure there are lots of people out there who feel the same.. its there loss if they dont want to bother, one day they will need someone and lets hope they can cope..