Online social skills programmes?

Hi,

I am a teacher, specialist mentor and mother of a 26 year old son who has aspergers. I am very interested in finding out the views of parents and carers of children and young people aged 5 - 12 who have an autistic spectrum condition with regard to online live social skills programmes. I know that my own son would have benefitted from something like this.  I am applying for grant funding to investigate the possibilities of a pilot study and would very much value the opinions and views of the community here.

If anyone is interested in participating a quick online survey then here is a  link -

(removed by mods)

I hope that this is ok to post? Any advice where I can gather opinion would be much appreciated.

Thanks

Parents
  • And this isn't research? Mods I wish you'd make it clear what is and isn't research.

    Whatever the intention, this is supposed to be a safe site where people can seek help from others. It mustn't be exploited as a source of information for researchers (even one with a 26 year old son with aspergers).

    But I also stress that it is bad research practice. It isn't a controlled source of respondants or subjects - you have no way of knowing whether repliers are genuine. For research you must know the full specification of a source population.

    Also information people divulge, even if anonimised, could identify the individual from what they say, or identify a service. There are real confidentiality issues which must not be treated lightly.

    Thirdly this is research about minors - age 5-12. For goodness sake stop and think about the legal issues of what you are proposing to do. There are very important guidelines on any research involving information about children, even if collected from parents.

    I cannot believe that someone who has a son with aspergers doesn't realise the issues that might arise from unregulated data collection on minors. That's really scary. And really wrong.

    What astonishes me more is that surveymonkey doesn't have some built in safeguards about the acceptability of some surveys.

Reply
  • And this isn't research? Mods I wish you'd make it clear what is and isn't research.

    Whatever the intention, this is supposed to be a safe site where people can seek help from others. It mustn't be exploited as a source of information for researchers (even one with a 26 year old son with aspergers).

    But I also stress that it is bad research practice. It isn't a controlled source of respondants or subjects - you have no way of knowing whether repliers are genuine. For research you must know the full specification of a source population.

    Also information people divulge, even if anonimised, could identify the individual from what they say, or identify a service. There are real confidentiality issues which must not be treated lightly.

    Thirdly this is research about minors - age 5-12. For goodness sake stop and think about the legal issues of what you are proposing to do. There are very important guidelines on any research involving information about children, even if collected from parents.

    I cannot believe that someone who has a son with aspergers doesn't realise the issues that might arise from unregulated data collection on minors. That's really scary. And really wrong.

    What astonishes me more is that surveymonkey doesn't have some built in safeguards about the acceptability of some surveys.

Children
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