Online social skills programmes?

The real problem is that you think that teaching someone to mask is a good thing. 

Hi LesleyJoan,

We understand you have positive intentions but unfortunately this forum is not the place to post surveys like this. We do get quite a few of these on here which is why you've encountered some negative remarks. However, we do not condone confrontational and judgemental language from any of our members especially when we have already stated our position.

Please refer to my previous post for how to make research requests. I am afraid we've had to remove your link again.

Take care,

Avi

Hi Classic Codger,

We have already made our position clear to LesleyJoan so there was no need for further comments on this. We ask that you do not use harsh, personal and judgemental comments in this way to anyone on this forum. This is also part of our Community rules.

Avi 

Hi Avi

Thanks for that. I seem to have started something here lol

I have amended the questionnaire. Here is the link below

(removed by mods)

Could you please have a look and let me know if it would be ok to request if any body would like to respond.

I am shocked at the personal insults and bullying that has been allowed at my expense and request that it is addressed as it is very upsetting and misleading and may be detrimental to what I am trying to achieve.

Regards

Lesley

Hi,

Sorry but you r assumptions are incorrect.

I am trying to find out opinin regarding views online social skills programmes as I am trying to apply for funding to set up a small pilot project with a couple of specific programmes that I have used in a profesional capacity. I have the cooperation of a couple of local schools and families who are keen to participate and will hopefully be conducting a pilot programme sometime in the new year.

I am not fake and am not going to be drawn into a personal insult conversation. I am new to this but will not be deterred by negative reaction. I am in the process of asking for advice on how best achieve these objectives and will continue to do so.

I understand that it would have been better to give an email address that ask for one and have rectified this on the survey.

My main concern was a link to a questionnaire which asked about 5-12 year olds, suggested meeting them and asked for a contact email. Whether it was addressed at parents is neither here nor there. Whether you had the best of intentions or otherwise does not matter. 

There are safeguarding guidelines where children are involved.

If you were informed and responsible you would have known not to do this. Your amazement at my reaction shows you haven't thought this through.

The forum rules are clear regarding both research and asking for personal information, like contact details. You should have checked the rules before posting.

But where children are involved you really do need to get informed of what is permitted.

Hi everyone. This was what I wanted to say to lesleyjoan, but I decided against posting it. Enjoy.

Hi lesleyjoan.

OK, let me be as clear as I can about what I think, let's see if even you can get it.

You made up a profile, and immediately posted a survey link. Clearly, you had the surveymonkey already set up. All of the information in the 'survey' is designed to raise interest in an unseen product. none of it would inform or support the development of such a product. I think that you're a snake oil seller - you've got something, and when you've promoted it, and gathered a database of interested people, you'll hit them with 'and all this for only £X a month'.

Standard sales technique. Get 'em interested, get their details, allow them to talk themselves into wanting it, and then Wham!

You have blatantly ignored rules 3 and 6 of the Community, and still can't see what the problem is?

Really?

This is a supportive community for people living with ASD, either with the condition, or living with someone with the condition. You are just a salesperson who is trying to make money out of desparate people. However, if you'd like to post a link on here to the free version of what you're offering, I'll be delighted to take it all back.

I still think you're a fake. I base my opinion on your own words and attitudes.

Hi everyone,

I am amazed by some of the comments and suspicion here, for what reason I am still not clear. It's a shame.

Thanks for any positive help or polite requests for clarification. 

Lesleyjoan

Hi lesleyjoan,

Hope you are well. Unfortunately we don't allow surveys our Community. It a safe space for people to discuss their experiences with autism.

Please refer to the community rules for more information on this. However, you can request research here.

Hope this helps.

Avi

Seconded Longman.  The rules seem to be being applied in a somewhat bizarre and inconsistent manner.

I agree, I am worried why the Mods haven't intercepted this. Lesleyjoan has posted a questionnaire link that asks for email contact addresses and proposes arranging meetings with children on the spectrum. That surely contravenes the forum rules.

The questionnaire isn't research or commercial, apparently, so what is it?

Whereas on another thread someone simply asking if other parents have a similar problem as their child, with no hint of any other motive, has been reprimanded for using the site for research.

Sorry, forgot to say. This is a supportive forum, it is not a forum to support people who are incapable of reading and understanding the rules of this website.

I don't belive that you are genuine.

lesleyjoan, here's an opinion for you.

In my opinion, you should not have put this post on here. You're asking for personaly identifiable information, so in my opinion you could be just another criminal seeking to collect e-mail maddresses that you can sell to fraudsters or scammers. Furthermore, you don't understand aggression that hasn't been expressed, so that gives me concerns about your intellect and your manners.

I reported this to the mods as soon as it appeared, I don't know why there hasn't been any response either way.

Question 20 asks if respoondents want their child to participate in a forum you are proposing, and question 21 asks for email contact details. While some of the questions ask about adult attitudes some are about the children's feelings.

You have to consider that someone could elicit contact with minors through an arrangement such as this questionnaire proposes.

You are asking people to trust you, as a complete stranger with information about their child, and how to set up contact with the child. Whatrever your intentions you need to give the implications more thought.

It isn't about me being aggressive. It is about you being responsible and understanding the legal guidelines about questionnaires involving children.

Hi Longman,

I must apologise if I have broken any rules re this forum.

I am aware of all you have mentioned but this is not a research piece nor a commercial venture and the questionnaire is directed at parents and carers and not the youngsters themselves. I m looking for opinion. Simple as that.

I really don't understand your agression to be honest.

I thought that this was a supportive forum? 

And this isn't research? Mods I wish you'd make it clear what is and isn't research.

Whatever the intention, this is supposed to be a safe site where people can seek help from others. It mustn't be exploited as a source of information for researchers (even one with a 26 year old son with aspergers).

But I also stress that it is bad research practice. It isn't a controlled source of respondants or subjects - you have no way of knowing whether repliers are genuine. For research you must know the full specification of a source population.

Also information people divulge, even if anonimised, could identify the individual from what they say, or identify a service. There are real confidentiality issues which must not be treated lightly.

Thirdly this is research about minors - age 5-12. For goodness sake stop and think about the legal issues of what you are proposing to do. There are very important guidelines on any research involving information about children, even if collected from parents.

I cannot believe that someone who has a son with aspergers doesn't realise the issues that might arise from unregulated data collection on minors. That's really scary. And really wrong.

What astonishes me more is that surveymonkey doesn't have some built in safeguards about the acceptability of some surveys.