Teacher wont believe anything is wrong...

Hi all : )  My Daughter was assessed last year when she was 4 years old and it came back inconclusive due to the ADOS and as the school claimes she has no difficulties.  She is due to be reassessed in two years when she will be 7yrs.  Autism was picked up when she was 2yrs and all the professionals mentioned asd from the start.  Since learning all about asd i know 100% that she has got it.  She was more classically autistic when she was a baby/toddler but since she has started school she has shown that she is able to learn (copy) and adapt.  We feel she has high functioning autism.  Her older brother has adhd and is now on the waiting list for assessment for aspergers also.  Basically, we have huge problems with her at home, out and about which is also seen in her gymnastics class etc (not just with us at home) but the school are not willing to help.  She was awake most nights last week crying her eyes out and occassionally hitting out.  She finds it difficult to comunicate her anxieties but im asumming she is anxious about the school play and going to see a panto in the next few weeks.  I have written everything down in her reading book for her teacher to see and try and work with me to help her but all i got back is that "all the children in the class seem happy to go to the panto"!!! She wakes up every morning claiming she is ill with a bad belly and doesnt want to go to school, it brakes my heart.  The teacher is very old school so i am told and basically does not have much knowledge about girls with autism.  There is a boy in the same year but different class who has aspergers and he is having a hell of a time in class due to sensory issues but the teachers can see his worries as he can get quite violent(although there is not much help for him there either), My Daughter wont, if she gets upset or angry about something she holds it all in until she gets home then blows!.  We had a meeting with the ed psych a few weeks ago who was reluctant to assess my daughter as the teacher claims there are no problems in class to report.  This upset me as i knew the ed psych would be able to see how my daughter interacts with her peers and how she comunicates, plays etc so she will assess her just before she goes through the 2nd autism assessment in two years time.  Once my daughter is in school, i can imagine her being happy as everything is so structured, she even talks to her peers in class but completely blanks them outside of school or even in the playground on the way to school and on the way out.  She likes her set routines etc  Has anyone been through a similar situation?  I dont know many people with girls with ASD especially with HFA/AS.  Thank you x

Parents
  • Hi - reading all your comments I understand what you are going through and how frustrating it is!  My daughter has just been diagnosed with AS at 10 yrs old, but I have known for a long time that there was something.  When she was 6 she had a teacher that just didn't understand her at all.  Shes always been very well behaved and polite at school but has always had problems with loud and sudden noises.  An unexpected fire alarm going off one day set my daughter on a downward spiral, very high anxiety, not sleeping, feeling sick and not wanting to go anywhere without me.  I tried to explain to the teacher that it was the alarm (and the panick on the teachers face) that set everything off but she 'couldnt see why the problems would last that long'.  They ended up taking her down to an empty classroom and trying to quiz her on how things were at home!  I was shocked and upset but thankfully it was near the end of the year and her next teacher was very understanding, although the problems were getting worse.  Then finally, 2 years ago, a teacher standing in for someone off sick at school took me to one said and asked me if anyone had ever mentioned Autism to me.  I think I was just waiting for someone else to say it, I took her to our Doctor who referred us.  It took 18 months in total but finally she will be getting the help she needs.  It's so hard to make people understand sometimes, but we know our children better than anyone else and it's hard to see them suffering.  x

Reply
  • Hi - reading all your comments I understand what you are going through and how frustrating it is!  My daughter has just been diagnosed with AS at 10 yrs old, but I have known for a long time that there was something.  When she was 6 she had a teacher that just didn't understand her at all.  Shes always been very well behaved and polite at school but has always had problems with loud and sudden noises.  An unexpected fire alarm going off one day set my daughter on a downward spiral, very high anxiety, not sleeping, feeling sick and not wanting to go anywhere without me.  I tried to explain to the teacher that it was the alarm (and the panick on the teachers face) that set everything off but she 'couldnt see why the problems would last that long'.  They ended up taking her down to an empty classroom and trying to quiz her on how things were at home!  I was shocked and upset but thankfully it was near the end of the year and her next teacher was very understanding, although the problems were getting worse.  Then finally, 2 years ago, a teacher standing in for someone off sick at school took me to one said and asked me if anyone had ever mentioned Autism to me.  I think I was just waiting for someone else to say it, I took her to our Doctor who referred us.  It took 18 months in total but finally she will be getting the help she needs.  It's so hard to make people understand sometimes, but we know our children better than anyone else and it's hard to see them suffering.  x

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